Tag Archives: Bipolar

Mental Health & Wellbeing, Quotes & Sayings

New Year Reflections on Light and Darkness; Health, Wealth and Madness

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As New Year 2018 breaks, and on a bright light January mid-winter dawn at that, I realise that 2017 has been a year of two halves or even four quarters, much like the seasons. I’ve diaried most of my non-married adult life, including the last 11 years. Along with an insomniac’s sleep spreadsheet and a bipolar mood diary, I’ve a fairly good idea of my moods and their seasons. 

“I will love the light for it shows me the way, yet I will endure the darkness because it shows me the stars.” – Og Mandino

Light and Darkness

I’m going to pepper my reflections with random quotes about light and darkness, which diurnally deliver some of the starkest contrasts of daily existence, but which are at their hardest to endure when the nights are sixteen-hours long and the days excruciatingly short. And particularly hard, when one’s mood is low, insomnia debilitating, leaving one drawing the curtains at midday and getting up as the sun sets in deepest winter. I long for the lengthening days of 2018 as it progresses to June’s summer solstice.

“Every human being is a mixture of light and darkness, trust and fear, love and hate.” – Jean Vanier

MAD, BAD, and SAD

For someone who is or has Bipolar Affective Disorder (BAD), with an annual accretion of Seasonal Affective Disorder (SAD), it’s only appropriate that I confess to also being MAD. Whilst calling someone mad is deprecated, it is thoroughly modern to have a Mood Affective Disorder including various depressions, bipolar disorders, and anxiety disorders – yes I have a GAD (Generalised Anxiety Disorder) too. My OCD seems to be collecting three-letter mental health acronyms! 

“Where there is much light the shade is deepest.” – Johann Wolfgang von Goethe

Light falling on darkened tree branches
Light falling on darkened tree branches

The low moods are so deep that you feel your world is going to crush you like suffocating under a mountainous avalanche of rocks and soil or at the depths of the ocean as the air runs out and the pressure crushes your lungs.

“The sunrise and sunset shows us that in life there are ups and downs. There is light and darkness.” – Debasish Mridha

Whilst many of these seriously affect my wellbeing I also regard them as part of the range and spectrum of personality and psychology. So whether one has the clinical diagnosis or not (I do), one is not one’s label, or doomed by it, since we all experience anxiety, low mood, and the seasons, to varying degrees. The difference is the degree to which we suffer and are immobilised in one’s ability to function in life, hold down a job, pay bills, or maintain a healthy functioning loving relationship.

“Light isn’t always buoyant and shadows aren’t always despair; yet both, I believe, are limitless in lessons that they share.” – Carolyn Riker

Housed but feeling temporarily not at home

The last quarter has been one of my worst in some six years. Brought low by overexertion and exhaustion, insomnia, arthritis, whiplash, chronic anxiety and panic attacks over benefits renewals and appraisals, and a near six-month long house rewire that upended my comfort nest, I became uprooted, homeless within my own home. 

“The most precious light is the one that visits you in your darkest hour!” –  Mehmet Murat Ildan

Yet, I appreciate that I have a roof over my head, just enough flexible work to meet the difference between housing benefit and rent, enough security from family on months I’m short, to avoid a past history of extensive rent arrears and three eviction notices and an unsecured debt-pile equivalent to a middle-class mortgage without any house to show for it.

Others, in worse situations, have seen a doubling of people living rough since 2010, alongside a 50% cut in homelessness funding, a rise in food bank use, people losing their DLA/PIP assessments, being stuck on six-week Universal Credit delays, and seeing mental health services in crisis and special measures as they fail to match ‘service user’ needs. Austerity has worsened our wellbeing and failed in its fiscal justification.

Suicide Safety Net

My own darkness arrived at a time of maximum therapeutic support. I’d just managed to get a second package of 6 therapy sessions within a few years. The first took 3 years of asking and the second, around 6 months. But even with weekly therapy (extended to fortnightly for a longer period), bi-monthly care team support, regular mental health team check-in calls, a loving longterm partner, and a veritable army of support cats – I still suffered 4 days in 3 months where I was suicidal.

“Always surround yourself with friends that have plenty of light in them. That way, you will always have candles around you when days are dark.” – Suzy Kassem

Getting through the immediate seemingly life-threatening panic or manic anger or the aching raw bawling sadness has taken every ounce of my energy, and drawn on the understanding of my lovely partner in ways that I never wanted to. I nearly broke my girlfriend! She is, however, heroic in her ability to separate my needs (without being needy) from any responsibility to solve or salve, only to be a supportive companion and a candle in my darkness.

“Look at how a single candle can both defy and define the darkness.” – Anne Frank

Fortunately, due to my most serious past suicide attempt five-and-a-half years ago, I’d ensured that my house was empty of the means to take my life (via pills at least). It didn’t stop me from feeling my fragility and emotional rawness of having the same suicidal ideation but a better safety net in place. Driving is dangerous when one feels the power to take one’s own life beneath the foot pedal on an angry with the world day.

Not so Superman/girl

My superpowers have more than once met their psychosocial Kryptonite. I say psychosocial because I’m well aware that it is my psychological wiring and emotional responses to social and financial situations that trigger my darkness, anger, and powerlessness. 

Surviving rather than thriving is a temporary reward and respite. Living to face the terrors and panic attacks of another day. That is why dying feels like such a tempting relief, the only way to take a day off.

“And I find it kinda funny, I find it kinda sad
The dreams in which I’m dying are the best I’ve ever had” – Mad World

Faerie lights dancing in the relfections of the lens
Faerie lights dancing in the relfections of the lens

I have good days too, and in-between average days, that are nonetheless relief days. Being bipolar I’m never far from depression, nor elation. So I respect both. I can swing from scarily suicidal to aesthetic appreciation of art, beauty, food and kittens in just hours. Sadly, my rapid cycling rollercoaster can look fine, be engaged, and yet hours before or later be considering suicide or lying in the bath wondering what it would be like to drown in nihilistic comfort before the warm welcoming water got cold.

“If we never experience the chill of a dark winter, it is very unlikely that we will ever cherish the warmth of a bright summer’s day. Nothing stimulates our appetite for the simple joys of life more than the starvation caused by sadness or desperation. In order to complete our amazing life journey successfully, it is vital that we turn each and every dark tear into a pearl of wisdom, and find the blessing in every curse.” – Anthon St. Maarten

Life is full of light and dark, morning and night, summer and winter. Contrasts that make the extremes, well, more extreme. The highs are ecstatic and the lows are the end of the world.

“Life isn’t just about darkness or light, rather it’s about finding light within the darkness.” – Landon Parham

Yes, company, compassion, communication, the comfort of friends, are a solace though not a solution during those lonely days, weeks, months, and sadly, years. I’ve been anxious for 45 years, depressed for 15, bipolar (officially, at least) for 5. But, I’ve been alive for 50 years, continually by the thin thread of tenuous determination to live another day – despite several attempts, and many more close calls to end it.

“Why not dare yourself to become a shining positive light where darkness is the only thing known?” – Edmond Mbiaka

Getting through the night

Closing the curtains in winter at 4pm and waking at 4-5am some 3-4 hours before sunrise, leads to hours of wakeful darkness, and how to endure it. BBC iPlayer Radio plays are often an answer or cricket match commentary from Australian timezones.

The constant onslaught of dark days and anxious early mornings is like being pelted with a slinger’s stones or archer’s arrows from an infinite quiver where each one won’t kill you but like a death by a thousand cuts will make you weaker and even less likely to get up and face the next day.

My 50 years, which feel like 500 at times, have taught me a healthy respect for mental wellbeing and to take pleasure in the little things like the fact that I woke up well today, and that it wasn’t raining. The longest night is past and longer days are around the corner, the light is returning, spring is coming.

I guess getting through the night is my daily version of other people’s getting through the winter. My rapid cycling mood means I experience the seasons on a quotidian basis. But I also learn from nature, that as sure as spring follows winter and morning follows night, so too will my mood lift or circumstance change. 

“I restore my book to the bracing and buoyant equilibrium of concrete outdoor Nature, the only permanent reliance for sanity of book or human life.” – Walt Whitman

Today, I walked among the trees, chatted with my partner, ate simple but tasty food, and stroked cats – lots of cats. I’ve survived another day. 

 

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World Mental Health Day improving wellbeing for all of us

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The shift from pathologising terms like mental illness, disorder, nervous breakdown, has been gradual, and we are seeing more reference to mental health and wellbeing, differences, spectrum diversity etc. This has been a long time coming, since from 1-in-4 to 1-in-3 of us will experience a mental health condition or episode in our lives, if not more of us.

What keeps us from giving up?

The very tools of survival that I’ve learned to use to attempt to thrive rather than just die or dive back under the duvet covers actually aid all of us. They’re very basic, and not pharmaceutical, though some are chemical – or at least release the endorphins (endolphins as I like to call them) and oxytocin type chemistry that aids wellbeing.

When speaking at an event in London last weekend, I was asked how, “how do you keep going, how do you remain strong?” The answer, for me at least, is that I’m stubborn! Practically speaking, though, I talk and walk, and when it’s going well, I walk the talk.

Caring Talk Saves Lives

I talk to people, I talk to myself, to my thoughts – giving them voice and an opinion (but no power) at the table in my head, and I talk to my diary. Well, I write, I reflect, I repeat – yes, I realise that circumstances, feelings, moods, anxieties, they come round in repeating circles, and I begin to recognise that I survive, that I’m still here, despite my best efforts to end that.

I also walk, I get outside as often as I can. Although, that’s not often enough as insomnia and mood disorders often keep me in bed half the day. Inertia destroys all my best intentions. Last weekend, though, I managed something rare, to swim twice and walk 5 miles in a day, taking in my environment and the beauty of the world around me. Fresh air and exercise help, if only we can kick the black dog off long enough to get outside.

Being bipolar, my mood can shift drastically and quickly in the same day. I’ve learnt to be kind to myself, and to forgive, be in the moment, and treat or reward myself for getting stuff done that would otherwise pile up and compound my anxiety.

Laughter is good medicine

I’ve also learned to both respect my mental health conditions, and to healthily take the piss out of them – not others, not the suffering, not the issues, but to occasionally make light of them so that they have less of a hold over me.

Speaking of laughter – Stephen Fry has said of suicide:

“There is no ‘why’, it’s not the right question. There’s no reason. If there were a reason for it, you could reason someone out of it, and you could tell them why they shouldn’t take their own life”

He is spot on. Although every story is different, mine nearly ended 5 years ago, but I am happy to be here now.

Seek help

Seeking help early before one is neither in the mood or position to seek help is important. Sadly, waiting lists are such that it can be a year or more wait for short dose CBT and that is often such a sticking plaster rather than a long-term improvement to wellbeing or coping. 

I’m back in therapy for the second time in ten years, and it feels incredibly healthy. It’s not a sign of failure but of active involvement in one’s own health management.

MAD, BAD, GAD, and quite possibly SAD

I seem to collect three-letter-acronym conditions, so that I’ve been diagnosed with multiple Affective and Anxiety Disorders. Their intensity varies and sometimes I’m the boss, sometimes they try to be. Again, a diary helps me see that I do bounce (well hobble) back eventually, and they never, any longer, keep me down permanently.

Again, a diary helps me see that I do bounce (well hobble) back eventually, and they never, any longer – I hope, keep me down permanently.

 

 

 

 

Diversity & Equality, Feminism & Gender, LGBTIQ, Politics & Economics

Gender, LGBTQ, BME, Disability – MPs Diversity in General Election 2017

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Representation in UK Parliament

Just how representative of the UK population as a whole were prospective parliamentary candidates and elected MPs in terms of gender, sexuality, disability, religion and colour/race/ethnicity? 97 new MPs joined the house, and Ken Clarke MP was re-elected as its oldest member and Father of the House. It is well known that, hitherto, the UK had the most LGB ‘out’ Parliament in the world, but not the most gender balanced, how has that changed after Theresa May‘s snap general election?

Gender | LGBT+ | BAME | Disability | Religion | Education | Summary

Gender: Female MPs compared to Male MPs

2017 sees 208 female Members of Parliament, up from 191 in 2015 (196 after by-elections). There were many seats where both the main candidates standing were female. 29% of candidates were women, 32% of those elected were – both records for the UK but not the world.

We were 46th in the world tables, we are now 39th. Guess who is first? Rwanda with 61% women, second is Bolivia with 53%. All others are less than 50%. Sweden (#6), Finland (#9), and Norway (#12=) are the top European nations, all Scandinavian. The first Western European nation is Spain at 14th and Belgium at 19th. Germany is 22nd but France 63rd! At this rate, 2062 would see gender balance in the UK Parliament. 

Labour fielded 40% women, the Green Party 35% (statistically, of course, 100% of their MPs are female!), UKIP had 13%. Of those elected, there is wide variation among the political parties. Labour have 45% (119) and their leader in Scotland but never England (except as caretaker). Meanwhile, there are just 21% (67) among Conservative MPs despite a history of two Prime Ministers and their leader in Scotland. 

Interesting that the DUP, the Conservatives in Scotland, and the Tories in England and Wales are all led by right-wing women, one of whom is anti-gay, another is gay, and another shifted to same-sex equality (through persuasion by a female LibDem MP) after a prior voting and campaigning record against it. Being a woman, it seems, is little impediment to political power in the UK. Indeed, add in Plaid Cymru, SNP, and for two weeks, even UKIP, only Labour (England and Wales) and LibDems haven’t been led by a woman.

Being female is no guarantee that one will hold pro-equality, pro-LGBT views. We now have a triumvirate of female-led parties forming a “confidence and supply” alliance to keep the Tories in power that may be in breach of the Good Friday Agreement.

LGBTIQ Sexuality & Gender Identity

With 45 openly LGB MPs (19 Tory, 19 Labour, 7 SNP) that’s also a record and 6 up from 2015 – at 6.9% that’s close to the supposed 6% openly LGB numbers in the population (much higher among young people, of course). None among the 12 LibDems, though their female MPs balance at 4 out of 12 is somewhat restored.

Seven Trans and two Non-Binary candidates stood (just 4 in 2015, so, more than doubling) but none were elected, several have stood in council elections before. Eddie Izzard continues to hint that he may stand as an MP.

UK LGB MPs are the highest proportion anywhere in the world. We have the most rainbow Parliament – quite an affront to the homophobic DUP with whom 19 LGB Tory MPs may now have to do electoral business with.

Since 4.5% of the people standing for election (147/3304) were openly LGBTQ, it means that LGB candidates are up to 1.5x more likely to win. Tories and Labour had 7% LGBT candidates, SNP 17% and 20% of their elected MPs, despite reduced numbers. Surprisingly, only 2% of Greens (same as UKIP!) and 4% of LibDems were. White gay men outweigh any other LGBTQ demographic 5x and are the most likely to be elected. Curiously almost zero LGBT candidates stood in Greater East Anglia! There’s an opening for me yet 😉

Black, Asian and Minority Ethnic MPs

Of the 147 LGBTQ candidates, just one was BME, in 2015 that was two – both shamefully low, though we don’t know the number of non-out candidates. However, 51 BME MPs were elected on 8 June – an increase of 10. At 7.8% this is just over half of the 14% general population representation.

Britain also elected its first MP of Palestinian heritage as Layla Moran for the LibDems “overturned a Conservative majority of almost 10,000 votes to win the Oxford West and Abingdon. Moran won the closely contested election by only 816, gaining 26,252 votes.”

Disability Representation

Just four openly physically disabled MPs were elected, 0.6% of Parliament, compared with 16% of the UK. Mental health is so stigmatised, one wonders if it were possible for someone to be ‘out’ with a diagnosed long term condition and an MP, other than depression and anxiety that affect 1-in-4 of us, and undoubtedly affect MPs similarly. It would be great to see a bipolar MP, to show it is possible to manage a bipolar life.

Religion

The new Parliament sees the UK’s first female Sikh MP, Preet Gill and its first turbaned male Sikh, Tanmanjeet Dhesi. Both are Labour MPs. In the past we’ve had 5 Sikh MPs in the last 15 years but never wearing a turban in the House of Commons. 

In the wake of the Manchester concert bombing, it is perhaps significant that the city elected its first Muslim MP, Afzal Khan – who was also ten years ago their youngest and first British Pakistani and Muslim, Mayor of Manchester.

Education

It shouldn’t matter, but it is interesting nonetheless with accusations that the Tories were run by the Eton and Bullingdon Club set, and even many who stood as Labour leader being Oxbridge educated.

The Sutton Trust believes that 51% of MPs were educated in comprehensive schools, and just 29% at public schools (ie privately educated). It is still disproportionately biased to private education, therefore. 

Summary

In conclusion, our LGB representation continues to be the highest in the world, across the three largest parties – but not elsewhere, and close to the assumed proportion of the general population. Several Trans, Non-Binary and similar, stood but at 9 out of 3300, they are about 10x underrepresented in standing, and to date unelectable; are they being stood as no-risk candidates in unelectable areas, that’s an analysis I’ve not done yet. On gender, we are getting there slowly, but ranking 39th in the world is a poor result, albeit an improved one. Realistically with parenting issues, 45% of Parliament would be a good showing for women, rather than the 32% we have. BME and disability remain woefully underrepresented. How a Tory deal with the DUP, who are anti-diversity on just about every count, can be squared with Parliament and the electorate’s ever-progressive diversity, remains to be seen.

Anniversaries, Identity, Mental Health & Wellbeing, Music & Video

Kurt Cobain, RIP in memoriam; On Being Yourself and too much Empathy

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Being Yourself by Kurt Cobain

Kurt Cobain - the Day the Music Died
Kurt Cobain – the Day the Music Died, 1994

Kurt Cobain, was born in 1967, and died 5 April by taking his own life, back in 1994, aged just 27. He flitted between narcissism, empathy, love and pain, trying to enjoy his life and simply be himself, but not feeling it, over-feeling everything else instead. He’d have been in his 50s now, just a month older than me. Some years ago, I also attempted suicide, after a lifelong struggle with identity and feeling too much.

Whilst Cobain is in nirvana now, where are we 20+ years on? Still struggling for identity, as individuals, and a generation? Cobain struggled with being seen as the voice of a generation. His band, Nirvana, was labelled “the flagship band” of Generation X, and Cobain himself proclaimed as “the spokesman of a generation”, something that did not sit well with him.

Faking it, Being Someone Else

“Wanting to be someone else is a waste of who you are.” – Kurt Cobain

Cobain was trying to work out how to be himself amidst the pressures of fame, parental divorce, love and loss, and mental health conditions including bipolar mood swings between depression and mania, as described by his cousin, a nurse, who noted his childhood diagnosis of ADHD and as an adult Bipolar (unconfirmed?). Several relatives had also committed suicide in the same way. 

He struggled to feel what he thought he was meant to feel or enjoy. He couldn’t fake the enjoyment of fame, or life itself.

“I’ve tried everything within my power to appreciate it” – Kurt Cobain, suicide note

“The worst crime is faking it.” – Kurt Cobain

Empathy and Fame

Kurt Cobain suicide note
Kurt Cobain suicide note

He mentioned empathy four times in his suicide note, and the struggle between feeling too much and yet not feeling anything – or what he thought was the right thing, at all. 

“I think I simply love people too much, so much that it makes me feel too fucking sad. The sad little, sensitive, unappreciative, Pisces, Jesus, man, ‘Why don’t you just enjoy it?’ I don’t know!” – Kurt Cobain, suicide note

Nirvana sold over 25 million albums in the US, and over 75 million worldwide, but fame and success do not fill the void. He hated the fame, and was envious of Freddie Mercury and how he seemed to relish it.

“We’re so trendy we can’t even escape ourselves…I really miss being able to blend in with people.” – Kurt Cobain

Reading, Writing & Lyrics

Cobain “occasionally took refuge in the counter-cultural writings of authors such as William S. Burroughs, Jack Kerouac, Samuel Beckett and Charles Bukowski”. Yet, described himself as having the “tongue of an experienced simpleton”, and hating the Freudian analysis that people subjected his lyrics to. Another reason, to explore him in his own words, not the interpretation of others.

“I’m not well-read, but when I read, I read well.” – Kurt Cobain

“I like to have strong opinions with nothing to back them up with besides my primal sincerity. I like sincerity. I lack sincerity.” – Kurt Cobain

Sexuality

Kurt Cobain was seemingly bisexual, though gave mixed interviews on that side of his personal life, calling himself “gay for a while” yet “more sexually attracted to women”. As a teen he was arrested and fined $180 for graffitiing “Homosex Rules” on a wall. He once said, “I started being really proud of the fact that I was gay even though I wasn’t.” It is not clear if he ever consummated this part of his persona, despite saying:

“If I wouldn’t have found Courtney, I probably would have carried on with a bisexual lifestyle.” – Kurt Cobain

Whilst Generation Y, born early 80s to 2000, followed Cobain’s Generation X, we are now on the Gen Z cohort, born since the Millennium. A group happy to be neither gay nor straight, to question gender and express it fluidly.

Women’s Rights

Cobain wrote about women’s rights in his songs, including concerning the rape of a 14yo girl after a concert (not one of his). 

“I definitely feel closer to the feminine side of the human being than I do the male – or the American idea of what a male is supposed to be.” – Kurt Cobain

“He was himself”

Canadian musician and writer, Dave Bidini, in an article for the National Post entitled “Kurt Cobain, who died 20 years ago today, wasn’t a hero, martyr or vampire. He was himself” ended with this comment:

“He looked like he didn’t care (because he didn’t) … His arms hang down and he turns sideways from the crowd, as if he’s trying not to be seen, even though 20 million people have their eyes trained on him. In a society where ‘bringing it’ and ‘all or nothing’ and ‘going for it’ are sicknesses pumped by fools who aspire to drive people apart rather than draw them together, Cobain’s sense of oblivion was, in a way, brave and confrontational, and that’s why he cracked even the hardest edifice and ate through misplaced pop culture like a creeping disease. In the end, he made an enormous impression for someone who wasn’t even there.”  – Dave Bidini, National Post

Cobain did escape, “Rather be dead than cool”, others need not take that route if they can follow his other wisdom, to be yourself and find someone you can be yourself with and talk to.

“It’s better to burn out than to fade away” – suicide note

Remember him alive though, here’s an awesome unplugged hour-long Kurt Cobain MTV concert in NYC November 1993 just months before his suicide, my favourite line of which was “like this is my third cup of tea already” – how Rock’n’Roll!

I will remember him, as much for the angst music of a tortured soul, as the desire to find and be himself, a journey I am also on, aren’t we all to a degree?

“I’d rather be hated for who I am, than loved for who I am not.” – Kurt Cobain

Books & Literature, Comedy & Humour, Film & Theatre, Memorials & Obituaries, Mental Health & Wellbeing, Quotes & Sayings

RIP Carrie Fisher – Actor, Author, Mental Health Advocate, in her own words

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Carrie Fisher, died 27 December 2016

Carrie Fisher will be mostly remembered for being Princess Leia in Star Wars as the Space Western princess with a gun and rapid riposte to Harrison Ford’s Han Solo when he needed a put-down. It didn’t stop them having a recently revealed off-screen romance. Also, off-screen was her battle with the darker forces of addiction and bipolar mental health. Her website records her in the way she’d prefer to be remembered as an “actor, author” and shamelessly, a “mental health advocate”, her site listed mental health resources, and she was active in promoting mental health awareness.

Carrie Fisher, The Princess Diarist (2016)
Carrie Fisher, The Princess Diarist (2016)

For the record, she starred in 44 films from Shampoo (1975) to Star Wars: Episode VIII (2017), wrote 7 books, and well over half-a-dozen plays, scripts and screenplays. More a signature action than her Leia buns and Avengers/Charlie’s Angels-style gun-aloft pose, her middle finger was often shot up at the press. She was a hero for her honesty, humour and heart, the media needs to treat mental health better.

As someone who battles and “sur-thrives” with Bipolar Affective Disorder, aka manic depression, myself, I find so many echoes in her statements on mental health, and her activism in helping others through honesty and sheer guts – or clitzpah, female “courage bordering on arrogance”, as a friend puts it.

A fitting tribute is, therefore, to remember her in her own words:

Carrie Fisher Quotes – In Her Own Words

“I really love the internet. They say chat-rooms are the trailer park of the internet but I find it amazing.”

On Writing as Therapy

Carrie Fisher, Shockaholic (2011)
Carrie Fisher, Shockaholic (2011)

“I have a mess in my head sometimes, and there’s something very satisfying about putting it into words. Certainly it’s not something that you’re in charge of, necessarily, but writing about it, putting it into your words, can be a very powerful experience.”

“I always kept a diary – not a diary like, ‘Dear Diary, we got up at 5 A.M., and I wore the weird hair again and that white dress! Hi-yeee!’ I’d just write.”

“Writing is a very calming thing for me.” 

I can echo those thoughts, totally! Writing slows my racing pacing thoughts down, coming up with the language that accurately and emotional reflects my thoughts on myself, life, the universe and everything, is a process that is cathartic, creative, and better than CBT.

Her humour

Whether scripted stand-up comedy or unscripted ad-lib, Carrie was quick witted, sharp, funny and could turn the tables on an interviewer. A vital skill in the harsh world of Hollywood and media criticism.

“I brought along Gary” (Carrie Fisher’s dog) “because his tongue matches my sweater” … “I think in my mouth so I don’t lie” … “what music makes [weight loss] worthwhile?” Not to mention some beautiful flirting with “DNA jackpot” GMA’s Amy Robach!

The humour, the jokey OCD matching, the flirting, she was my kind of inappropriate unboundaried, humourous getting-into-trouble, woman.

“There’s no room for demons when you’re self-possessed” via Twitter (2014)

“I googled myself without lubricant. I don’t recommend it.” on David Letterman (2009)

“Sometimes I feel like I’ve got my nose pressed up against the window of a bakery, only I’m the bread” – Postcards from the Edge (1987)

“Pure lust is an oxymoron” via Twitter (2016)

On Life and Being Herself

“I am a spy in the house of me. I report back from the front lines of the battle that is me. I am somewhat nonplused by the event that is my life.”

“I don’t want my life to imitate art, I want my life to be art.”

Again, one feels like an actor in one’s own drama, there is sometimes a feeling of distance from the actions one takes, as if one were only playing a part, however grand a role.

On Body, Weight and Aging

“I don’t like looking at myself. I have such bad body dysmorphia.”

“I think of my body as a side effect of my mind.”

“I’m in a business where the only thing that matters is weight and appearance. That is so messed up. They might as well say ‘Get younger,’ because that’s how easy it is.”

“There were days I could barely struggle into a size 46 or 48, months of larges and XXLs, and endless rounds of leggings with the elastic at the waist stretched to its limit and beyond – topped with the fashion equivalent of a tea cozy. And always black, because I was in mourning for my slimmer self.”

“…when I do lose the weight, I don’t like that it makes me feel good about myself. It’s not who I am.”

“Along with aging comes life experience, so in every way that is consistent with even being human.”

On Mental Health & Bipolar Mood State

Carrie Fisher, Wishful Drinking (2008)
Carrie Fisher, Wishful Drinking (2008)

“I’m very sane about how crazy I am.” – Wishful Drinking, (2008)

“I now get awards all the time for being mentally ill. It’s better than being bad at being insane, right? How tragic would it be to be runner-up for Bipolar Woman of the Year?” – Wishful Drinking, (2008)

“Anything you can do in excess for the wrong reasons is exciting to me.”

“I have a chemical imbalance that, in its most extreme state, will lead me to a mental hospital.”

“Drugs made me feel more normal.”

“I went to a doctor and told him I felt normal on acid, that I was a light bulb in a world of moths. That is what the manic state is like.”

“I have two moods. One is Roy, rollicking Roy, the wild ride of a mood. And Pam, sediment Pam, who stands on the shore and sobs… Sometimes the tide is in, sometimes it’s out.”

The manic mood ride that is Roy and the pessimistic panic that is Pam, is very familiar. I’ve not heard anyone else echo my experience of drugs making one feel normal. I tried weed, ecstasy and minor drugs like that, even smoking and drinking, but they didn’t do anything for me, indeed ecstasy made me responsible, hyper-sensible! 

On Surviving and Thriving

“Ive [sic] stopped trying to take things a day at a time. I now take 2 or 3 days at once—hoping it’ll cause a blur effect & I might look younger.” via Twitter (2015)

“I don’t want to be thought of as a survivor because you have to continue getting involved in difficult situations to show off that particular gift…”

“If anything, my mother taught me how to sur-thrive. That’s my word for it.”

Boundaries and Bad Judgements

“The world of manic depression is a world of bad judgment calls.”

“I’ll never be known for my work with boundaries.”

“Mistakes are a drag, because you get in the area of regret and self-pity.”

Fortunately, it’s not all bad boundaries and manic mistakes, and the following day come-down into reality and realisation that one has overstepped, overdrawn, overdone it, and occasionally overdosed. Manic can be fun, or at least hypomanic can, with just enough awareness to feel empowered, energied, extrovert and not yet into the territory of relationship, finance and employment self-destruction.  

“The manic end of is a lot of fun.”

On acting as if all is well

“One of the great things to pretend is that you’re not only alright, you’re in great shape. Now to have that come true – I’ve actually gone on stage depressed and that’s worked its magic on me, ’cause if I can convince you that I’m alright, then maybe I can convince me.”

“Stay afraid but do it anyway. What’s important is the action. You don’t have to wait to be confident. Just do it and eventually the confidence will follow.”

“I’m fine, but I’m bipolar. I’m on seven medications, and I take medication three times a day. This constantly puts me in touch with the illness I have. I’m never quite allowed to be free of that for a day.”

She is free now, “drowned in moonlight, strangled by my own bra“. Whilst she was “nonplused” about her life, we are far from nonplused at her death and feel the disruption in the force in 2016, which has been a traumatic year of loss. RIP Carrie, Princess, Queen, General and very human being, “May the Force be with you.” 

Postscript: Carrie Fisher’s mother, Debbie Reynolds, star of Singin’ in the Rain, died aged 84 of a stroke within 24 hours of Carrie.

Art & Painting, Mental Health & Wellbeing, National Days

World Bipolar Day, BAD Mood Scale, Manic Creativity & Vincent van Gogh

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World Bipolar Day

Today and every day is bipolar day for 2-3% of the population who have a Mood Affective Disorder including Cyclothymia and Bipolar I & II. A day to recognise the issues, struggles, and occasional joys and spurts of creativity – sometimes manic, experienced by people with Bipolar Affective Disorder (BAD), was created to coincide with Vincent van Gogh’s birthday, 30 March, since he was posthumously believed to have had a Bipolar type condition. World Bipolar Day aims to:

“bring world awareness to bipolar disorders and eliminate social stigma.” – International Society for Bipolar Disorders

Prevalence | Creativity | Mood Scale | van Gogh | 2018 update

Bipolar Incidence & Prevalence

Whilst 1-in-100 or 2.6% are commonly cited figures, some studies have shown wide variations, ranging from 2.6 to 20.0 per 100,000 per year, in the incidence of Bipolar Affective Disorder (Lloyd & Jones, 2002). These variations have been e.g., regional, SE London is twice that of Nottingham and Bristol, or by ethnicity, by socio-economic class, by childhood intelligence – especially high verbal IQ, or by hormones and gender – some studies show a much higher incidence in the female population, sometimes 2-3x.

“estrogen fluctuations may be an important factor in the etiology of bipolar disorder and it is obvious that more research on this topic is needed to clarify the role of estrogen in women with bipolar disorder…Why is it that rapid cycling occurs more often in women?” – www.ncbi.nlm.nih.gov/pubmed/23510130

Link to Creativity?

It also alleged that among artistic and creative types there is a higher incidence of bipolar mood disorders, that may be genetic. Indeed, as many as 40x the national incidence, among a group of 30 American authors, studied over 15 years:

“43 per cent of them had bipolar disorder compared to only 10 per cent of the control group and 1 per cent of the general population.” – Bipolar Disorder and Creativity

A further survey of 47 British authors and visual artists from the British Royal Academy found that 38% had been treated for a mood disorder.

“A recent study carried out at Stanford University by Santosa and colleagues found that people with bipolar disorder and creative discipline controls scored significantly more highly than healthy controls on a measure of creativity called the Barron-Welsh Art Scale. In a related study the same authors sought to identify temperamental traits that people with bipolar disorder and creative people have in common. They found that both shared tendencies for mild elation and depression with gradual shifts from one to the other, openness, irritability, and neuroticism (roughly speaking, a combination of anxiety and perfectionism).” – Bipolar Disorder and Creativity

Vincent van Gogh

Vincent Van Gogh The Starry Night Google Art Project
Vincent Van Gogh, “The Starry Night”, 1889, MOMA, NYC via  Google Art Project

The famous Dutch post-Impressionist painter, Vincent van Gogh suffered quite wild swings in his mental health and many paintings were produced from his asylum room. Van Gogh is thought to have shot himself, after struggling with declining mental health in his mid-30s. He had spent most of the last 18-months of his life in an asylum, but two months later was dead as the result of a presumably, though not proven, self-induced shooting incident or suicide attempt.

Ironically, it was a period when he produced many iconic paintings, some en plein air. His famous image titled ‘The Starry Night’ was a pre-sunrise nocturne as seen from his East-facing asylum window, but finished in the asylum studio, as he was only allowed to draw in his room, not paint. Van Gogh’s beautiful and happier ‘Village Street and Steps in Auvers’ was painted just days after release from the asylum:

Vincent van Gogh Village Street and Steps in Auvers
Vincent van Gogh, “Dorfstraße undTreppe in Auvers mit Figuren” – ‘Village Street and Steps in Auvers’, 1890

Barely weeks later, and days before his death, he was painting several large wheat fields canvases and in a letter to his brother Theo, he wrote:

“I have painted three more large canvases. They are vast stretches of corn under troubled skies, and I did not have to go out of my way very much in order to try to express sadness and extreme loneliness….I’m fairly sure that these canvases will tell you what I cannot say in words, that is, how healthy and invigorating I find the countryside.” – Vincent van Gogh, Letter to Theo van Gogh, 10 July 1890

His late paintings demonstrate an artist at the height of his talent, yet also the depths of his troubles, for whom art and the outdoor landscape was creative catharsis and therapy. What would the art world have witnessed had he lived on?

Bipolar Mood Scale Diary

Bipolar Mood Scale & Insomnia Sleep Diary Nov 17-Jan 18
Bipolar Mood Scale & Insomnia Sleep Diary Nov 17-Jan 18

It is typical for accurate bipolar diagnosis to take a decade and work through several misdiagnoses en route. I was first diagnosed with Cyclothymia over 4 years ago, but subsequently told it was Mood Affective Disorder and then Bipolar II, along with rapid cycling and mixed mode variations, and exacerbated by Seasonal Affective Disorder during winter months.

CBT – Cognitive Behaviour Therapy, aided my own self-management, but so did self-knowledge, awareness, and diarying. I enjoy my hypomanic periods, less so the depressions which I’ve fought for 12 years or so. Finding balance when you only exist at the poles is a tricky act to accomplish and may involve staying in when you feel like going out and going out when you feel like staying in!

Risks, when hypomanic, for me include inappropriate conversation, loss of impulse control, manic spending, flirting, obsessional behaviours, and risk-seeking. Yet, the benefits when high are hyperactive stamina and energy, stream of consciousness ideas flooding, huge reading and writing output, charismatic and entertaining confidence and loquaciousness.

“I managed to rack up £300k of credit, hardly average! I was, and indeed am, very convincing when hypomanic, it made me a good salesperson, deal-maker, innovator, public speaker but terrible at time and money management.” – May 2013

Having been in a balanced mood state for nearly 3 months now, a rare occurrence, possibly due to recent endocrine changes, I miss the hyper states. I also realise, however, how destructive they could be to life, economics, and relationships, whilst at the same time being a creative buzz. I don’t miss the lethargic, inactive, hopeless depressive episodes at all, although they were a great way of avoiding life and its stresses.

The best advice I was given was to monitor my mood on a daily basis, as I was already doing with my insomnia diary and general personal diary. The catharsis of writing and recording also came with the recognition that moods, highs, lows, sleeplessness all came in phases, that changed – they got better, and they got worse. Unlike, when I suffered with depression for 6-8 years as that felt like nothing would ever get better. The Bipolar Mood Scale diary has helped me to hold out for the good days, and to manage my moods better.

Bipolar Mood Scale

Mania
10Total loss of judgement, exorbitant spending, religious delusions and hallucinations.
9Lost touch with reality, incoherent, no sleep, paranoid and vindictive, reckless behaviour.
Hypomania
8Inflated self-esteem, rapid thoughts and speech, counter-productive simultaneous tasks.
7Very productive, everything to excess (phone calls, writing, smoking, tea), charming and talkative.)
Balanced Mood (Euthymia)
6Self-esteem good, optimistic, sociable and articulate, good decisions and get work done.
5Mood in balance, no symptoms of depression or mania. Life is going well and the outlook is good.
4Slight withdrawal from social situations, concentration less than usual, slight agitation.
Mild to Moderate Depression
3Feelings of panic and anxiety, concentration difficult and memory poor, some comfort in routine.
2Slow thinking, no appetite, need to be alone, sleep excessive or difficult, everything a struggle.
Severe Depression
1Feelings of hopelessness and guilt, thoughts of suicide, little movement, impossible to do anything.
0Endless suicidal thoughts, no way out, no movement, everything is bleak and it will always be like this.
0-10 Scale of mood from depression to mania

Living with Bipolar

I am BAD, Bipolar Affective Disorder
BAD, Bipolar Affective Disorder (also Danish for ‘bath’)

Being or having bipolar – people’s attitudes to which verb to use vary, should not be romanticised. It is both a blessing and a curse, and for some is very hard to live with. I’ve made friends with mine, though it is still unpredictable. I’ve come to appreciate the moment, mindful that it can change, but I take the rough with the smooth now. Hopefully, I can look back on past suicide attempts as distant memories, and seize the creative periods to be productive and expressive, whilst trying to rein it in when it tips into hypomania.

World Bipolar Day 2018 Update

The last 6 months have included the worst 3 months in 5-6 years (when I last seriously attempted suicide), and the best 2 months in a year or so. That’s Bipolar for you. The bad period leading into last winter included 4 suicidal days, the worst of which, thankfully, fell on the same day as therapy as I survived another near miss. That has kept me real and respectful of the risk of suicide. Paradoxically, I don’t treat suicide lightly I have a healthy recognition of its power, yet I do make light of it as I find humour lessens its hold and the fear of talking about it among others. Any jest at my multiple suicide ‘failures’ (a word not recommended to be used) is made at my expense and my expense alone. 

I’ve also had 2 months of whirlwind energy starting not long after the days started getting longer and post-equinox light improved. These have included lengthy travels, sometimes speaking at two events in one day or half-a-dozen in a week, of copious writing and presentation preps on everything from art to human rights, mental health to LGBTIQ history and awareness, culminating in a TEDx talk that was “naked, raw, and vulnerable” on my mental health and genderqueer journey.

I have made peace with my Bipolar, in fact, I wouldn’t give it up. I recognise the trade-offs, very serious ones at that, with regard to risk to life, health, bank balance, and relationships. I also enjoy the highs, the manic productivity and energy, the blue sky thinking as far outside of the box as one can imagine. I’ve never been on a fairground or amusement park rollercoaster, my life is one…

…but just because it’s a rollercoaster doesn’t mean it’s fun though. I hate amusement park rides! I experience the tops & bottoms, highs & lows, with little respite or moderation in between.

I guess I seek out calm attractions rather than wild rides to offset the bipolar which delivers enough of the latter itself. I’m also an ENFP ambivert, flitting between extrovert and introvert depending upon my mood.

Mostly, I survive, sometimes I thrive, often I hide. Thankfully, I have a support network of family, friends, super partner, cats, books, Netflix, and community mental health wellbeing service and great therapist = my safety net.

 

Mental Health & Wellbeing, Psychology & the Mind

International Day of Happiness, Last Day of Winter, First of Spring

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Today is the International Day of Happiness and the last day of Winter. As far as I am concerned Spring has been under way for some time with the delightful daffodils and rays of Spring sunshine daily illuminating the view from my window into the woodland beyond.

Solar Eclipse and Spring Equinox

Happiness Sun Leaping for Joy
Woman Leaping for Joy at Sunset (Pixabay)

It’s been a rare day that has seen a solar eclipse coincide with the evening of the March equinox. An equi-nox, from the Latin, marks the moments in the year when the length of night is equal to that of daylight. It has long been considered a time of rebirth, fertility, and association with nature’s natural cycles.

Moods like the weather!

I’m not sure if feeling happy today is compulsory or not for the pessimistic glumguts out there. That said, when I was in my darkest depression and suicidal, I, also, ceased being an optimist. Indeed, as someone who suffers from a bipolar disorder – cyclothymia, it is all I can do to stay on top of my mood swings, and near impossible to influence them, just manage them. If anything, my moods are like the weather, sometimes clouding over, or then all of a sudden the sun breaks out, and then it pisses it down! Rapid cycling change.

Think Yourself Happy?

I do believe that, at times, one can think oneself happy – or content, at least, despite the surrounding circumstances. For, whatever may be done to the body, the mind is our last refuge and sometimes the greatest place of anxiety and attack. Yet, if we can calm that, then we may find peace amidst the storm, and internal sunshine in the darkest winter.

Earlier this week, I gave a talk and presentation on torture – not the happiest of subjects, for Amnesty International at the University of East Anglia (UEA), and the words of Gandhi that I quoted are still both a challenge and an inspiration:

“You can chain me, you can torture me, you can even destroy this body, but you will never imprison my mind.” – Mahatma Gandhi

Things outside our control – Powerlessness

When we can’t control the weather – as with the disappointing solar eclipse today occluded by clouds, or our finances, someone else’s love, or our government ministers – when democracy seems to have failed us, what is left that we can control? Where can we find comfort or hope, when we feel powerless? Is depression, which can affect 1-in-4 of us, something we can in any way lift ourselves out of?

Depression is not a choice!

I remember, all to well, the well-meaning suggestions “to get out more”, “do some exercise”, “get out of bed”, “get some sunshine in your life” given to me when I was suffering excruciating depressive lows and suicide attempts. The advice was not well received, when one feels the weight of the black dog suffocating your very breath.

Shifting the circumstances and chemicals that affect depression is hard enough when well, nigh on impossible when ill. Yet, I do believe that, to some extent, we can think ourselves well, improve our state of mind and body. But I am not saying that it is easy or guaranteed.

For me, I had to come off anti-depressants to even try it, and that is not something I would medically advise, nor am I in a position to. My path is my path. It unleashed in me, instead, a bipolar rollercoaster, which has become more manageable through daily awareness and diarying, in which I feel both more alive and yet when I have lows, at least more conscious of the possibility and experience of change. Every day feels like a new day, at last, it could go up, it could go down, but at least it could go somewhere!

The Serenity Prayer

The Serenity Prayer, by the American theologian Reinhold Niebuhr, has been used by many to help distinguish between things we can change and those outside of our control:

“God, grant me the serenity to accept the things I cannot change,
The courage to change the things I can,
And the wisdom to know the difference.”

I’m a bit stubborn at the accepting of that which I cannot change and like to think in mental messianic terms of being able to do anything. It doesn’t always work, but sometimes I can shift my thinking and mood, or at least my attitude to it.

Happiness as a National Growth Goal

United Nations Secretary General, Ban Ki-moon, has stated that the world:

“needs a new economic paradigm that recognizes the parity between the three pillars of sustainable development. Social, economic and environmental well-being…Together they define gross global happiness.”

Takshang Bhutan Buddhist Monastery
Takshang Bhutan Buddhist Monastery (Pixabay)

Since the early 1970s, one country – Bhutan, has recognised happiness as a goal over and above national income and actually adopted the goal of Gross National Happiness over Gross National Product.

Here in the UK, we have a an HPI (Happy Planet Index) score of 47.9 and rank #41 of all the countries surveyed. Our wellbeing score of 7 is actually ranked #19 of 151 countries but we are let down by our poor ecological footprint on the earth.

Over the years we are apparently getting happier, living longer, yet also remain anxious. Not surprising, in these austerity times, and I deeply suspect the UK measures of wellbeing.

In a UN General Assembly resolution of 12 July 2012,  the following 20 March 2013, and each year since, has been proclaimed The International Day of Happiness. This was in order to draw attention to the relevance of:

“happiness and well-being as universal goals and aspirations in the lives of human beings around the world and the importance of their recognition in public policy objectives.”

“Life, Liberty and the pursuit of Happiness” are a well-known objective and unalienable right in the United States Declaration of Independence. Sadly, we are only guaranteed the freedom to pursue happiness, no one can give it to us, they can certainly reduce the factors that make us unhappy – health, wealth, peace, among others, but at the end of the day, happiness can at best come from ourselves.

A Spring boost to the system

As a boost to the chemical enjoyment of something akin to happiness, we can of course enjoy more hugs and the oxytocin they release, and draw some Vitamin D from the increasing daily sunlight. Certainly, I feel an enormous improvement to well-being after some light gardening and having the sun beat down upon my back.

I spent my day, in the end, weeding, cleaning up around the already fast growing rhubarb, discovering some small over-wintered potatoes in the ground, and taking great pride and pleasure in how the warmth has pushed the asparagus above the surface already.

Photographic joy

Winter Snowdrop
Winter Snowdrop

It was also an opportunity to have some fun with a new lens adapter which enables my old 1978 50mm f/1.2 Minolta MD Rokkor-X lens to work on modern digital bodies (effectively a 75mm portrait lens on digital). The old lens is superb, and been described as producing a “complete bokeh creamy-mosh” i.e., a lovely aesthetic softness to the out of focus zone just beyond the shallow depth of field sharpness when the lens is wide open. Boke is a Japanese word meaning blur or haze.

The lens is still worth £300+ because of the aperture brightness, and it would have been a waste not to find a way to reuse it – I used to use it for low light rock photography in black and white 30 years ago. Aperture priority and manual only but hey it feels like old school photography again, just without the expense of film and with all the immediacy of digital results.

Spring Wealth and Happiness in a Daffodil

Early Spring Narcissus Daffodil, a symbol of happiness
Early Spring Narcissus Daffodil

Daffodils of many varieties are out in my garden and surrounding woodland. They are said to symbolize rebirth, new beginnings, and are pretty much the first Spring flower. Whilst I’ve always seen the humble snowdrop as a winter plant, to me it marks the halfway point of winter and the daffodil (narcissus or jonquil) as denoting the end of winter. In Wales, China, and as gifts, daffodils – in a bunch, are said to be harbingers of wealth and happiness.

Happiness can be simple

Happiness can be found every day, in the simple things, the asparagus and photography, weeding and sunlit warmth, the cats playing in the garden. They may not cure a low mood, or persistent depression, or solve financial stress, or bring about world peace, but in the present moment, they are to be enjoyed for what they are, and may bring a temporary boost – and I’ll take as many successive boosts as I can get!

(An earlier version of this was first published on Bubblews)

Articles & Writing, Comedy & Humour, Film & Theatre, Memorials & Obituaries

Robin Williams RIP, Laughter, Tears, Memories, Depression, Suicide, Understanding

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Saddened, shocked, but not sure I was surprised. Such was the sudden news of Robin Williams‘ apparent suicide at 63 that the Internet was awash with rumours last night that it was a ruse, a fake story. Details emerged overnight (British time) that he had indeed been found dead at home in Marin County, California, apparently having taken his own life. The latest information is that “Marin county sheriff’s department lieutenant Keith Boyd confirmed that Williams was discovered hanged, and had apparently attempted to cut his wrists.”

Owing to considerable empathy with his bipolar depression, this is a  tough article to write in memoriam to the wonderful Robin Williams, who I first watched aged 11 when he appeared as the alien Mork. Sadly he has returned to his home planet and left us the poorer, but we have over a 100 films and thousands of laughs to remember him by and the challenge to understand mental illness better over our lifetimes.

Update (11 August 2015): It is now a year to the day that Robin Williams passed on and he still makes me laugh and cry in equal measure and continues to inspire whether in life or role.

Films and Characters

Robin Williams at Happy Feet 2 Last night I was preparing to watch The Birdcage film with my partner and a friend. We never got round to it, though I’d loaded it into the DVD up to the opening scene. It’s now set for a memorial movie night with the memorable Armand. He was so versatile, able to play funny, straight, sad, young, old, real, fantasy, even a penguin or two in Happy Feet as the voices of Ramón and Lovelace.

Of his co-star in Happy Feet Two, ‘La Toti’ Sofía Vergara, Williams said “I’d walk 50 miles in the snow just to stand in her garbage … and I cleaned up that line!”

Williams appeared in over 100 films, as well as television and theatre, so versatile were the roles that he played. Whether as Mork or Peter Pan, he always looked like he would never grow up and would live forever – one reason we, as adoring fans, all feel the wrench of his going now.

Perhaps, most memorable for me, was Mrs Doubtfire, and the agony of a father doing anything to get close to his kids. Its long-posited sequel Mrs Doubtfire 2 will presumably now no longer be made.

He was scheduled to appear in several unfinished films, but one that just made it to completion and was screened this summer at the Los Angeles Outfest Film Festival is Boulevard (2014) in which he plays an older married man coming to terms with his secret homosexuality.

Another inspirational film for me was Dead Poets Society (1989), as I always wanted to be a maverick motivational teacher, much as my own inspired English teacher was when I was 13 – he’d sit on the desk and read to us Kafka, Tom Sharpe and Shakespeare rather than setting us essays. In the film Williams, plays Keating the English teacher, who challenges the pupils to see the world in different ways, standing on their desks, ripping pages from books that deadened poetry, encouraging them to carpe diem, “seize the day” and call him “O Captain! My Captain!” in reference to Walt Whitman’s 1865 poem about the death of Abraham Lincoln.

“It is some dream that on the deck,
You’ve fallen cold and dead.
My Captain does not answer,
his lips are pale and still;

My father does not feel my arm, he has no pulse nor will;
The ship is anchor’d safe and sound, its voyage closed and done;
From fearful trip, the victor ship, comes in with object won;

Exult, O shores, and ring, O bells!
But I, with mournful tread,
Walk the deck my captain lies,
Fallen cold and dead.”

Waiting for Godot

Williams appeared with his friend Steve Martin in a much acclaimed limited-run production in 1988 of Samuel Beckett’s Waiting for Godot. A review said that “As the earthbound Estragon, Robin Williams is the same Robin Williams we have come to know and love for his manic intelligence, comic body language and perfect sense of timing. In this part, he is in bad need of a shave. Between convulsions, he gives unmistakable signs of a soul in puzzled torment.”

The play is about two down-in-the-dumps men waiting for someone, possibly God (though denied by Beckett), to show up. Being unable to think of a good reason to leave, it becomes an eternal and continually disappointed wait. Williams’ real life “puzzled torment” and wait is over and he has decided to leave us. A brave choice – a phrase that some people will not be comfortable with, but one that echoes my own experience, though I’m glad I survived now.

Stand-Up Comedy

Robin Williams performing stand up comedyWilliams began his stand-up comedy career in the mid to late 1970s, around the same time as his first film role in 1977 and appearance as Mork in Happy Days (1978) which led to the spin-off series, Mork and Mindy, which was hugely ad-libbed.

In the Happy Days Season 5 episode, “My Favorite Orkan”, Williams, as Mork, tries to kidnap Richie and take him back to his planet but is foiled by the Fonz. Originally a dream sequence, it was so popular that it was edited so as to be real and allow for the character of Mork to have wiped their memories and reappear in Mork and Mindy as an exiled alien from the planet Ork where humour is banned. Oh Shazbot! Mork showed up again in a retrospective episode of Happy Days, “Mork Returns”.

In 2004, he was voted 13th on Comedy Central‘s list of the “100 Greatest Stand-ups of All Time”. It was his improvisation that got him the role of Mork, standing on his head at the audition. Ad-libbing often led to film and television scripts adapting to him, rather than him sticking to the lines. Much of his role as the genie in the animated film Aladdin (1992) was improvised.

In 2009 Robin Williams conducted a delayed 26-city US comedy tour called “Weapons of Self-Destruction“, aimed at George Bush, rather than himself. He was hospitalised that year for heart surgery after announcing the tour in 2008. In 2010 he performed the show in Canterbury, New Zealand, and donated all the proceeds to the Red Cross and post-earthquake rebuilding projects.

I’ve often heard the phrase “the funny man of comedy” used of Williams, but aren’t all comedians meant to be funny? To me it means someone who can laugh at situations rather than make jokes by taking someone down. The irony is of course that the funny man who appeared in Happy Days was an unhappy man.

Me with the black dog of depression aka Raven who delivered unconditional cuddles when I was battling suicide
Me with the black dog of depression aka Raven who delivered unconditional cuddles when I was battling suicide

Just because someone can make us laugh, does not mean that they can make themselves happy. The daily battle with the black dog of depression and for Robin, at least, the associated ‘demons’ of drug and drink addiction, lifts momentarily in the manic moments of humour and comedy, but returns like a fog blanket blocking out the sun. Judgements of his addictions are insensitive, for those who’ve experienced depression, know full well that it can lead to other behaviours in order to survive or end the feelings of depression. Concert pianist James Rhodes called depression a “cloak of lead, a toxic second skin“:

“Depression is like being forced to wear a cloak made of lead. You don’t get to choose when to put it on and take it off. It is a second skin which gradually seeps into your own, real skin and poisons it until you are a walking, toxic, corrosive bundle of infectious awfulness. The thought of suicide is the only real respite and the only chink of light at the end of the tunnel.”

Robin Williams was funny, depression is not, though he laughed at his own “demons”, drink and drug addictions, which had returned to afflict him in the last few months. But that doesn’t give us the right to laugh at his life, troubles or choices.

I’ve done stand-up comedy and did a whole set on my own suicide attempt, it was dark and dead pan. Someone even thought I’d made it all up and commended my ‘acting’. In fact, it was the truth, often stranger than fiction, and my own surviving suicide and finally wanting to be alive again that enabled me to laugh at death and make fun of myself. That is not for others to do though. Doubly insensitive and offensive is the joke on Twitter I’ve seen about it now being an ideal time for Kellie Maloney (the transitioning Frank Maloney) to audition for Mrs Doubtfire 2, now that Robin is dead.

Others have taken to the web to say that they have no sympathy for those who take their own life, or suffer from alcohol and drugs addictions. The Guardian has had to moderate and delete about 10% of the comments on the report of his death. I’ve read of people on Facebook calling it “the pussy way out”. So wrong. Suicide is often a decision to end not only self-torment but to end being a burden to others. It can take courage and bravery to attempt it, it is not a coward’s way out as Fox News‘ breaking news editor and anchor Shepard Smith called it, it is the last straw for someone who is tired of fighting for survival every day. I’m not encouraging suicide, but I am saying stop judging it and view the person who has gone as now at peace.

Stephen Fry“How can someone so well-off, well-known and successful have depression?”. This was said of Stephen Fry, but is doing the rounds about Robin too. Fry references an article by Alastair Campbell in which “he suggested changing the word ‘depression’ to ‘cancer’ or ‘diabetes’ in order to reveal how, in its own way, sick a question, it is. Ill-natured, ill-informed, ill-willed or just plain ill”.  Fry writes about feeling sad, lonely, depressed, suicidal and the rights to seemingly illogically having those feelings.

“If you know someone who’s depressed, please resolve never to ask them why. Depression isn’t a straightforward response to a bad situation; depression just is, like the weather. Try to understand the blackness, lethargy, hopelessness, and loneliness they’re going through. Be there for them when they come through the other side. It’s hard to be a friend to someone who’s depressed, but it is one of the kindest, noblest, and best things you will ever do.” – Stephen Fry

Even when surrounded by loved ones, depression is a lonely disease, but having a partner or friend around has saved me from acting on suicidal feelings more than once in the past. It was when all alone, in the darkest hours of the night that I attempted it more seriously.

Stephen Fry on depression

“I used to think the worst thing in life was to end up all alone. It’s not. The worst thing in life is to end up with people that make you feel all alone” – Robin Williams

Very often there are no answers or solutions, and there should certainly be no judgements for what is in cause or effect a chemical imbalance in the brain. I’ve suffered from depression for over a decade and for the last 2 years been under investigation for a variant of bipolar or cyclothymia, Mood Affective Disorder. Fry has cyclothymia and whilst Williams never regarded himself as fully diagnosed, many clinicians think he had depression and Bipolar Affective Disorder.

Whilst the label may help with gaining the right support and treatment, it is irrelevant to how we treat people with the symptoms of the varieties of depression and addiction. We have not lived their life, seen inside their mind, and therefore do not know the balance of accountability for their own actions and suffering under the weight of seemingly intransigent conditions that afflict people indiscriminately and unfairly.

Depression disables, debilitates, and is often met with misunderstanding that you can do something about it by pulling yourself together, getting out more, getting up or some such chivvying coaching. Similarly, with suicide, the offers to “talk to me” before you try it next time, or of it being a “selfish way out” that hurts others, are ignorant, even if often well meant, thoughts. Suicides can be planned or spontaneous, cries for help or calls for the help and feeling a burden on others to end, persistent or momentary feelings of the need for it all to stop, the feeling of powerlessness or the only way to take control.

Dean Burnett in the Guardian called it a “staggering ignorance of mental health problems” to refer to suicide as a selfish act. Suicide and depression are not selfish. Williams had access to the best help around, but he was the “clown that could not be fixed“, as Simon Jenkins writes:

“There was no help that Williams and others like him could not and did not receive. It failed. All illness is a great leveller, but none levels like mental illness. It remains the poor relation of medicine. Research is paltry. Therapies are halfhearted. Drugs are primitive.”

One-in-four of us will get a depression related illness. Yet it receives a small percentage of even 1/40th of the medical research and treatment budget.

Family

Robin Williams’ favourite children’s book was CS Lewis’ The Lion, The Witch and The Wardrobe which he would read out loud to his kids. Famous for his funny voices, when reading it to his daughter, named after Princess Zelda from The Legend of Zelda computer game series, she said “Don’t do any voices. Just read it as yourself.” One of the hardest things in life is to be yourself.

His third wife and now widow, Susan Schneider, said:

“I lost my husband and my best friend, while the world lost one of its most beloved artists and beautiful human beings. I am utterly heartbroken.”

Robin Williams Good Will Hunting Real Loss

Tributes

Fellow actor and comedian Steve Martin, tweeted that he “could not be more stunned by the loss of Robin Williams, mensch, great talent, acting partner, genuine soul.” ‘Mensch’, whilst simply meaning “human being” is a Yiddish idiom for a genuinely good person, a real “stand-up guy”.

Barack Obama, in offering condolences, referred to Williams as “one of a kind”:

“Robin Williams was an airman, a doctor, a genie, a nanny, a president, a professor, a bangarang Peter Pan, and everything in between. But he was one of a kind. He arrived in our lives as an alien – but he ended up touching every element of the human spirit. He made us laugh. He made us cry. He gave his immeasurable talent freely and generously to those who needed it most – from our troops stationed abroad to the marginalized on our own streets. The Obama family offers our condolences to Robin’s family, his friends, and everyone who found their voice and their verse thanks to Robin Williams.”

Tributes will continue to flood in from fans, friends and fellow entertainers, Sarah Silverman described him as “pure love” and Stephen Fry sad he was “so so kind”.

At one point over half the trending tags on Twitter were Robin Williams related including #RobinWilliamsWillLiveOnForever.

George Takei said “May the heavens be brightened with your singular glow” and several have commented on Twitter saying that now he can make God laugh. Friends have expressed sadness, referenced mental illness and one wrote “I can’t believe Mindy is Morkless”, an apt end for how it all began back in 1978.

Gifted, manic, funny, sad, tormented, lost to us, but now at peace. RIP

[This article is an expansion of one first published here]