Tag Archives: Mental Health

Happy New Year – From TwentyTeens to Twenties, a Decade of Change (part II)

4th January 2020 Katy Leave a comment

This is part two of my last decade’s reflections on self and society, mainly the former, but ‘who I am’ resides in a gender constructed society too, and that has been my journey working out how to be me, whoever that is, in a world that gives me just two boxes, neither of which fit. I’ve written nearly half-a-million words in my diary the last ten years, it’s been a rough but rewarding ride and I’m re-reading them all, selecting what stands out, to see how I feel now. Part One can be read here. This was meant to be the next five years but instead, it’s just 2015, the year of shock Tory election win, the year before Brexit, the year before my op. Terrorism, gender dysphoria, mental health, PIP, CBT, squirrels, dreams, death (not my own), language, poetry, orchids and Doctor Who.

Diary entries – 2015

New Year is marred by the Charlie Hebdo magazine offices massacre. Whatever one’s beliefs about their satirical output, freedom of speech is vital. #JeSuisCharlie rises in response and millions gather in Paris and across France in mourning and protest. Even in Norwich, French nationals and locals numbering some 200 gathered at a vigil.

Had a fabulous time, apart from the early start, scriptwriting from scratch under pressure and filming with BBC Voices in the TARDIS and green screen, playing Doctor Who, with Esther as my assistant, encountering a future version of Earth without stigma or discrimination for Time to Change. I took Jelly babies on set as a homage to Tom Baker. My regeneration was more of a transformation!

At One Billion Rising event, chatted to a friend who said “I don’t think I have ever covered so many topics of conversation in the space of about 10 mins in my life before” – try being inside my head!

Great fun being an atypical speaker at a school sixth form during LGBT History Month and doing an alphabet soup sex and gender ed talk. Perhaps my own current label bio might read along these lines: Greysexual, Pomomental, Metasexual, Sapiosexual, Emosexual (I get aroused when people cry!), Agnostigender, Polysensual, Gynephile, Androappreciative, Biflirty! I love how young MOGAI folk are moving beyond LGBT to hundreds of ever-evolving identity reflections.

Our regular Gender and Sexuality (GAS) group met to discuss Feminist no-platforming, SWERFS, TERFS & biological sex essentialism – a topic that was only going to get more toxic in coming months. So-called ‘TERF’ wars kicking off online – a turf war between sex and gender and their intersection.

We launched non-binary east anglia online as a support and information group. Did not anticipate its growth and how many younger trans people are more inclined to non-binary identities and semi-transitions. I’m certainly drawn to the human (h)interland.

Sleep all over the place and having bonkers dreams that I can’t decipher the origins of. For instance, this one, an odd dream, seemingly in Colchester in a conference centre needing to find a loo, there was a queue and then a girl in front says come in with me and it’s a double loo with heated seats so we co-share. Ending up, in the dream, going back in to get a coat I’d left there, after it was shut, and girl accompanies me, opens up, cries, I get aroused, console, then out of nowhere her kid appears and they both notice my arousal which I apologetically say that never happens on HRT (except when girls cry – now what’s the Greek for tears?) next her estranged boyfriend/child’s father shows up to get kid. I explain to her my current asexuality and sort of fudge description of my existing relationship. Meantime I start tidying stuff, that wasn’t there – tools, clothes, boxes and emerge from loo with not just my left behind coat but boxes of tidied stuff. Come out to my partner in the car park and try to explain I only went in for my coat and why it’s several hours later and I’ve loads more stuff with me! I tell Esther the dream and she says I should have gone for it with her, I said not with the kid and the father in the toilet too! My mind would have a field day with Freud and Jung.

Next day, on the loo, I come up with a dystopian novel plot set in futuristic post-austerity Greece with an opening chapter set at a modern bisexual Socratic dinner party akin to Plato’s Symposium and the ascending ladder of sex, love and beauty. I’ve always been drawn to the aesthetic and sapiosexual side of love rather than the act of sex which I’ve mostly found painful and an anticlimax even with the best partners, contexts and deepest longing and loving. I’m increasingly comfortable with being asexual and suspect it will continue post-op, if I go through with it.

Spend the week draining most of emo-psych energy worrying about forthcoming car MOT and how I’ll afford it, expending huge effort not to spend, to save enough for any car bills. In the end, my reliable 8yo Zafira passes with no costs – the two broken tail-lights held together with sellotape passed. The whole process and worry exhausted me, so I spent the afternoon and early evening sleeping to recover! People without mood disorders don’t realise the energy required sometimes just to hold it together – like my sellotaped lights, exercise self-restraint and save for bills like this. And by people I mean my psychiatrist!

Next, it was my turn for an MOT, with my lovely GP surgery which feels more like an audience for my bipolar comedy routines. Apparently, I do entertain them, brighten up their day, especially after other patients show up late, or complain a lot. So lovely phlebo-nurse says I’ve shrunk, put on weight, and my bad cholesterol has been very naughty, but my daily drinking habits are fine – something with which my psychiatrist would strongly disagree, and did! 20 units of rioja and 10 of whisky on bad sleep weeks. So I am now 12 stone 1, but 11 stone 11 with my boots off, less once I’d stripped more layers off, anyway we compromised and agreed to put 11 stone 7 in the notes, after all, breasts must weigh something!

Getting busy on the talks front speaking at UEA for Amnesty on human rights and torture and at Aviva on gender and mental health this week. Who would have thought that this scared of public speaking kid would ever be talking or teaching in front of others.

Bipolar moods mean that when I’m up I’m on top of the world and also in a world of my own where little affects me. When I’m down, I’m like a flat balloon where every comment punctures and deflates me further, I feel everything, with the world that I’m usually on top of, instead, weighing me down, sitting on my shoulders, like a weary muscle-worn Atlas.

Had tea with my ex-vicar of 5 years ago, and we discussed how I felt about trans op possibility (he was also a psych nurse). He ended up saying I should write a book.

Financial stress, internal politics at a work project making me feel like no longer being involved – wrote an angry email but did not send. I’m anxious about my op too and appropriately taking cats in for neutering, stressful in itself. Not feeling like waking up tomorrow. Outside vicious 50mph winds ripped the felt off the shed roof.

Did 4 hours DIY and clearing today. It has taken me 5 years to get round to rebuilding some shelves, only this time with estrogen I swear they took twice as long, I screwed in all the wrong places, assembled them upside down, and ended up one leg short!

To op or not to op? Part of me wants to just get it out the way, I’m 48 and still have persistent dysphoria, so not a passing fad, Over 40 years of feeling this way, nearly 10 years of living as Katy but avoiding the more drastic physical options. I’m quite happy some of the time as genderqueer non-binary and am quite realistic that an operation won’t make me fully female, yet society makes being in between even harder than being traditionally binary transgender, so it feels like having to opt for one or the other and meantime juggling the endocrinology-bipolar-energy issues.

It’s 70 years today since the liberation of Bergen Belsen, another example of man’s inhumanity to man and what happens when you scapegoat an entire – or rather several – people groups, dehumanise, persecute, incarcerate and attempt to wipe them out. It is 33 years since I visited Belsen as a 15-year-old, the same age as Anne Frank who died there just months before its liberation. It left indelible memories on me and a life-long belief in human rights for all people.

Reflecting that it’s 1095 days since my last suicide attempt, feels like Suicides Anonymous Recognising that one is only a dashed moment away from mental health relapse gives my wellbeing a dose of respect and regular reality check.

In May, Esther finds a new place to live and moves out. Initially, a shock and many including my mum think that we’ve broken up. Instead, it actually feels fine and liberating to have my space back and to still be in a relationship yet each of us able to express ourselves and our environment the way we like.

Election day and apparently, you can vote in your pyjamas, whilst drunk, or high – mental incapacity of any kind does not lose you your right to vote, being in prison does.

As usual, I stay up all night to follow the results.

Tory majority of 10. How? All three other male leaders resign. Women leaders of minority parties all stay – after all they improved their vote share. LibDems lost 15% and Scottish Labour was reduced to a single seat, losing 40 of its 41 seats to the SNP, Labour gained in London but not enough to balance losses elsewhere. I suspect we will have a Tory government for some time to come and the LibDems will be tarnished by being in coalition, also for years to come.

Charing Cross GIC appointment and endocrine with Dr Leighton Seal, breast exam, genital exam including rather oddly a testicle sizing with a cross between what looked like prayer beads or anal beads, like a ring sizer! Was told breasts were well above average development and C going on D. Not sure what letter size my soon to be ex-balls were!

Cooked a rather extravagant and fabulous 5-course Italian “Mum Dine With Me” meal for my mum’s 80th birthday. An age that I doubt I’ll ever make or want to.

Collected and kicked out over a hundred slugs during late-night slug and snail patrol around the raised veg beds. Aided and abetted by cats clambering on my back as I bent down to scoop up the slimy invaders and other kittens trying to knock over my collecting jar!

Got involved in mediating a mental health intervention and advocating for a friend in trouble at local Uni. Exhausting but a revelation to support and witness another bipolar/BPD sufferer and realise how I sometimes come across to people, ie space invading, intense, hyper, racing, loud, forceful. It’s tough being me or around me sometimes and I appreciate those that understand me.

Dreamt I woke up in bed with a topless Barack Obama! Now, what’s that about?

Get interviewed in NHS magazine about my transition.

Begin regular Wellbeing support meetings with excellent mental health staff helping to ground me. Also, start CBT sessions – shame you only get 6.

Go to the dentist for the first time in fifteen years – terrifying and lucky I didn’t leave it any longer as gums were beginning to get seriously damaged. Hadn’t been able to afford it but now I’m on part benefits I can get free NHS dentist. Fortunately, the dentist is female, friendly and foreign, my favourite trio.

Life is and has been hard for 10 years and despite the downs and dark days, I am simultaneously at my happiest…But need to end this chapter of indecision and move forward…Because I’m stuck. In no man’s land … literally… Neither one thing or the other…Can’t swim or beach as still a half-and-half entity that doesn’t feel a whole…My bits don’t function have always been anorgasmic and get aroused by touch, empathy, intelligence during dinner and not in bed, lol…So just want rid really of something that’s non-functional. Surgery probably won’t correct the feelings in my head but it will stop the debate in my head and end a chapter that I really want to be closed so that I can live my 50s rather than be on constant pause as my 40s have been.

I’ve taken up drawing again and find guitar, music, reading, gardening, cooking, photography and writing settle and calm my mood better than any pills I’ve ever been prescribed.

Hosted a party at mine but then crashed mentally, a friend took over the food, Esther introvertly hid, and my only calm point was playing the guitar on weed.

Did a Human Library for dozens of 15yo pupils at a school in Acle and it topped the day. Their questions, and reflections on us as books and how honest and open we were without taking offence, was, well, how ‘light touch’ rather than ‘over-examined’ education should be.

Few people go out to dinner and end up discussing Hebrew, Arabic, Chinese, Japanese, Malay, Nabatean, Linear B, Dutch, Italian, Cuneiform and Hieroglyph! But thanks to Esther, Alison, Ng and his family – we did.

Pride again and thousands attend. Also, did a trans diversity and growth talk with Christian opposition in attendance and a politics panel, sharing the stage with Lady Phyll and Clive Lewis MP.

My series of CBT sessions is ending and I’m trying to work out how I will self-manage going forward. Write myself a SANITY acrostic:

S – Self-acceptance/self-love
A – Authenticity, being yourself
N – Natural/your ‘normal’ state/neurodiverse/nurturing self
I – Integrated & intact/holistic wholeness
T – Treasuring your voyage, travelling YOUR journey
Y – You-nique, enjoy being one-of-a-kind, not one-of-a-crowd

I can be MAD, BAD and SAD (a trio of affective disorders) but I can also be glad but rarely trad and who I am is no fad!

My neighbour and friend, CJ, and partner of Linda Bellos dies of cancer after years of pain and survival. For all Linda’s criticism of gender and our fiery but friendly discussions, they have both respected and supported me through my transition and I will miss CJ’s kindness, humour and big Irish heart immensely.

I’m in a good place right now but I’m continually reflective on the times when I’m not. I’m also acutely aware of how I can be overwhelming, or lack a filter, and how hard that is to self-control. Yet the same energy also makes me hyper-productive and creative, it just comes with a side effect of inappropriate! I’m not dissing the meds I could be on, I just found they numbed me, and I was more at risk on them than off them. I’ve battled 3 years off them and have been the better for it. But getting human health support has been a struggle all the psychs want to give out is pills for my ills, not talk for my walk!

Meanwhile, my self-comforting OCDs get crazier. I now order my books by colour and size and have recently taken to only reading books that match my outfit or room colour!

Get community mental health help filling in a PIP application, an exhausting process I couldn’t do on my own.

I know I’m ever so slightly nuts but I think I am a metahuman hybrid – crossed with a red squirrel, yes red not grey – I am an endangered scarce breed, indeed I am unique – the human squirrel. I have just beaten Bonnie and Clyde, the resident garden grey squirrels, to the walnut tree harvest this year, they started on it yesterday. Today, I crawled along branches, climbed ladders, and harvested 480 walnuts (I counted them) – and there’s still the same number left in the tree. Over the next week, I collected another 1900 more, also hand-counted. Found that I can make walnut ink from the husks, garden paths from the broken shells, and could actually eat the walnuts, if only I liked them!

National Poetry Day and I attempt only my second poem in 30 years, it is pretentious and certainly doesn’t scan, called ‘First Light’ I enjoyed the creative distraction and process of writing, even if not the resulting form:

Night’s obsidian obscurity
draped in its sable cloak
As a necromancer’s nefarious
theft of yesterday’s sun

The dark Cimmerian conspiracy
Inconsistently lunar lit
Stolen illustrious illumination
Swift to flight, slow to return

Just as Stygian stealth enveloped
Sun’s setting the night before
Swirling caliginous clouds obfuscate
And bury its subdued disc

Sleep inconveniently intervenes
Sending all to slumber
Except the stars that puncture
Night’s indistinct ink

Yet dawn’s crepuscular creep
First blush of orange and pink
Painting pastel perimeters
Drawing forth pre-dawn

Light leaks, dispels darkness
Night’s mourning veil withdraws
Dawn declares its intent
A new canvas is prepared

Twilight tweets its birth
Nature’s nests peep forth
Panes of windows warm
Rivulets of moisture drip

Aurora invokes sleepy sunrise
Calls to creation’s creatures
Awake, shake off the night
Day’s divine design awaits

Speak at and attend a demo with local Muslims and Quakers among others including a veteran Labour MP opposing the bombing of Syria.

Wow, NHS Charing Cross GIC rang me offering a transfer to Mr Bellringer at Parkside for private surgery. The surgery would be in a couple of months, not a couple of years. The offer is being made to only longest-standing/waiting patients. Shocked, pleased, petrified now. What do I say/do? I asked what the difference would be, apart from the timescale, they said better food! That’s enough for me.

SHIT Trans Op date is 6 Feb 2016!!!!
Crumbs, cripes, Holy crap Batman, Parkside ring up with my health roadmap for the next few weeks and months mapped out and all on dates I can make – no excuses! No turning back.

Psych appointment with a quiet unassuming Doctor who, after 75 mins, had me down as bipolar II with Generalised Anxiety Disorder (GAD) – so now I’m MAD, BAD, SAD, and GAD!

Pre-op GIC appointment with Mr Bellringer and the wonderful nurse Iffy, they totally relaxed me with their own humour and hugs. Esther offered herself as a model upon which to make my post-penectomy and orchidectomy labia, Mr Bellringer said with wicked seriousness and humour “I have to work with the available material”. Thanks mate!

Always found it odd that the most beautiful of flowers – the orchid with four times as many varieties as mammals on the earth, is so called because of its ugly testicular root tuber! Greek ὄρχις orchis means “testicle”. Happy to go ahead with a conversion from testicles to flower though! I’m always rescuing forlorn garden centre orchids and nursing them back to beauty on my bedroom windowsill.

Now onto the 6 weeks of pre-op HRT withdrawal.

Diary entries – 2009-14, 2016-19

Part I is here. Obviously, a part III is needed as 2015 was full-on and 2016 was significant. I write some 25,000-75,000 words a year in my diary and this was a thin year word-count wise but I hope the selections above offer an insight into the madness, melancholia, mayhem and musings that are me.

Mental Health & Wellbeing, Trans

Happy New Year – From Teens to Twenties, a Decade of Change (part I)

1st January 2020 Katy Leave a comment

Everyone from Spotify to the Trainline is wrapping up our year or decade in music or travel. The biggest gifts to myself that I unwrapped over the last decade were my transition(s) and life purpose/career reboot(s). All the while managing mental health which included suicide attempts, eviction notices, near death-by-debt, and ever-growing physical back pain and arthritis. So as we go from the twenty-teens to twenties I’m reflecting on a decade of change – mine and society’s. (Skip the social commentary and jump to my personal diary entries if you prefer)

Politically, nothing seems to have changed – indeed, Change UK a new political party lasted all of 10 months. 2010 brought us a Tory coalition and 2020 brings us a Tory landslide – or rather mudslide as it seems as if we’ll sadly slip more into the mire of a Dickensian depression (socio-economic and/or mental health) for many and little England populist nationalism for others.

Internationally, though we are leaving the EU at a time when more of our European neighbours than a decade ago are living and working here, propping up our NHS, social care, agriculture, and hospitality sectors. Many have made their lives, relationships, and families here. Over the last decade, I have gained a Dutch partner having begun the decade with an American one.

But, always look on the bright side, I can now Netflix and chill (in the asexual sense) since it launched in the UK in 2012, stream music via Spotify, take photos on a phone to rival a camera and yet my average internet speed is barely better than 10 years ago! Some things have stood still in the countryside creating a digital divide between city and county. In 2010, BT Openreach launched ADSL2+ with up to 20Mbps speeds, I managed 2.4Mbps back then rising to 9Mbps with fibre in 2015 but now averaging 3-5Mbps as the service has deteriorated and I’m part of the unreachable left behind 2% rather than the 10% who can now get 1000Mbps+.

Human rights wise, we gained the Equality Act in 2010, same-sex marriage in 2014 and civil partnership equality on the last day of 2019! The fear among many is that LGBT+ rights may go backwards if the UK under a more right wing pro-Brexit Conservative government emulates US Republican reversals of liberal social diversity.

Technology, society and politics aside, I’m more interested in my personal and psychological changes or dramas, my partner calls me a “drama queer”! I’ve been in therapy at least twice in the last decade and stopped dating therapists (those I wasn’t seeing professionally)! In terms of the dating game, I’ve gone from doubtful male heterosexual divorcee to confirmed trans non-binary asexual open relationship.

Looking over my diary for the last decade has been illuminating and encouraging, having navigated its more depressing chapters. I’m closing in on 53 but my 40s and 50s have been more frightening and fulfilling than any other decade of my life. I now live a life that I’m happy to still be living and not a suicide statistic, though I must have exhausted and exasperated my partners and therapists!

Diary entries – 2009

Never been more tired, in debt, sleepless, inundated, buried, yet happy to be myself – who am I? The question at the nub of spirituality, philosophy & therapy.

Joined the Norwich Pride collective ahead of our city’s first Pride.

Delivery man called me Mr Went then said his wife would die for my nails, all the time I was standing there in a pink robe.

Decree Nisi came through. Fifteen years marriage to a Christian psychiatrist over.

Started seeing transgender GP specialist Dr Richard Curtis at Transhealth.

Changed my name by deed poll to Katy Jon Went. Felt right and that including ‘Jon’ was transparently genuine and historically accurate.

Got dumped by email. First girlfriend post-divorce. Feel like a teenager! Taught me to risk again though.

My dad thinks I should get testosterone injections not oestrogen patches. To “man up”.

Someone asked me what I was more afraid of, the gender change surgery or scuba diving … I said scuba, the answer is telling!

Went to San Francisco to do a sex and relationships workshop. Met a girl. Fell in love. First time at 42 years of age I ever made the first move on a girl after spending the whole weekend being afraid of her beauty and aura.

Previous partner becomes abusive and malicious creating false criminal accusations. Police get involved. Scary stuff. Traumatic. Mum backs me but dad says no smoke without fire.

Proposed to American girlfriend in a heart-shaped pool at a hot spring, got a yes!

So tired on the way home from delivering a foreign nationals diversity and language training at a Yorkshire prison that I slept for an hour in the car (in a layby) and nearly veered into the path of a lorry – which got me thinking as after I wished I’d just died…I still wish for the burden of the gender dilemma to disappear, to take away the pain of never being one or the other, of never being happy, without removing the happiness I do get from my increased genderfree expression. Even hormones seem an irreversible decision that would affect not only me but my relationship. I need to talk, to find the ever elusive answers, the people that open me when discussing how I feel are my US girlfriend and a trans man I met over there. How to have these conversations and not burden them with my thoughts and true internal despair. I feel I have to choose between love and gender and cannot have both.

The sun is out and it feels like the darkest day of my life, with suicidal yet manageable feelings twice in a week, absolute unremitting sadness about unsolvable gender and unrealisable relationship and financial/legal pressures…it is too much but I won’t kill myself, but what will I do, I don’t know…

I’m a jumper, diving in and examining myself from within a relationship or situation rather than deliberating at the edge and never doing anything. Yet on gender, I’m always on the cliffedge too afraid to jump and overexamining my options.

A US trans man friend of my partner said they felt like I had the energy, essence and mind of another FTM ie a woman becoming a man, it’s like there’s a man inside my girl inside my guy. A Russian doll of a guylemma.

Many of my new friends have only known me as Katy and they are 100% convinced I am fully female stuck in a male body … I am not … there lies the dilemma. When they call me woman, female, I close up, when they call me girl, feminine, or female essenced/energied I open up, but I still find guy and male energied also true though words like man and masculine not, I find male a neutral term. I guess I feel majority female essenced with a significant residue of male energy and mixed mind, something that I want to honour and be honest with, it doesn’t make me male or female, man or woman, it makes me me with no box to live in and a discomfort for me in conforming and that may lead to embarrassment for others but like Spike Milligan said I can only be myself all the others are taken.

Feeling my loneliness, crying wanting to dial back the clock and start over as a child and just be more honest about my loneliness and gender stuff rather than just being brave. I want to wrestle, argue, be tickled, smile, anything to force my face and body out of gloom since being depressed is perversely and paradoxically an effort and an emotional muscle held taught that needs to relax and break out into a smile.

I have both been male to suppress my female feelings and been female to avoid being the male I hate, or the hatred of men and their hardness, their unfeeling, their bullying, their insensitivity. If gender is a construct, what am I? A freemale or female?

I’ve had a strange 3 days: gay Wednesday, guy Thursday, girlie Friday!

My and Norwich’s first Pride was awesome, free, diverse and 5x bigger than anyone expected. Went to 3 after parties, had people come on to me, and nobody gave a fuck about where I was at with my gender, I was just Katy to them.

Went to my first Human Library, took out a Transgender Book.

Diary entries – 2010

Exploring bisexuality whilst dithering over gender. Not sure about either!

Broke up amiably after a year with US fiancee realising despite our love our lives had different directions and my gender decisions were still an unknown dimension. She taught and challenged me loads on authenticity and knowing what I want. (In 2019 I got to revisit her)

Starting doing guest slots on Future Radio.

Became a book at a Human Library – title “Ex-Missionary”!

A year of open relationships and cuddle buddies.

Started taking hormones. Felt like finally having the right fuel in the tank! Wonder if I can get away with hormones only to defeat my gender dysphoria?

Dumped the makeup and heels and fell in love with Dr Martens. Get regularly told by other trans people that I’m letting the side down, not making enough effort to be feminine! I prefer the company of trans men, drag kings and butch lesbians. Not sure who I’m attracted to or who I identify as.

Diary entries – 2011

Explored BDSM from the other side of the equation (having done submission in 2009). Psychologically interesting.

Fell in love with someone. Complex and complicated situation. Continued loving others too. Love isn’t always logical nor exclusive. Can’t decide whether I’m polyamorous or monogamous, needy or giver, a dreamer or a realist in relationships.

Tried stand-up comedy. Scarier than coming out!

Joined the Muff Scouts – not just full of butches but for women of all types and origins!

Winter exacerbating low mood and prescribed Tamezepan which I add to my Valerian solutions to sleep deprivation.

Christmas is the focal point for family/trans/marriage stress memories and repeats, not to mention financial anxiety and present pressure, mixed up misgendering from the extended family. Mum is a valiant supporter who although finds it difficult is determined to learn and be loyal and loving.

Diary entries – 2012

Paradoxically under all the financial stress, depression, insomnia, dysphoria I am actually content and happy, just can’t change some things so trying to learn the grace to accept those I can’t and those I refuse to accept to remain stubbornly optimistic in the face of overwhelming odds! 2012 resolution is to write, read and laugh more.

Falling months behind on rent.

Get documentary made about me and my transition including go-ahead from Dr Curtis to join surgery waiting list – despite being not entirely sure I wanted it.

Feeling suicidal, mainly money worries and exhaustion re sheer daily survival but also relationships, gender, family acceptance and chronic insomnia. Also losing my faith (in God).

Intelligent stimulation is sometimes the only thing that keeps me going, I wouldn’t be without my emotions either, but my mind – thoughts and feelings, constantly tugging at each other like Plato’s passion and reason paired horses of a chariot and Jung/Klein’s (rather than Freud’s) id/superego trying to manage them. My head is like a constant boardroom meeting during a semi-hostile takeover/merger … it’s vigorous (in its true etymological sense), never boring and sometimes entertaining to watch!

Was told by my psychiatrist that I was the most reluctant transsexual he’d ever met!

Attempted suicide by pills through bawling tears – was interrupted by a friend and neighbour in the early hours and survived. Looked after and fed lasagna comfort food by friends and lovers.

Got referral to community psych team and so begins the journey to mental wellness as well as gender transition.

Realised my faith in religion and possibly God is fully gone.

Adopted a hedgehog orphan.

Break up with unavailable relationship.

Meet Esther at Hostry Festival and begin platonic and then not so platonic relationship.

Take part in massive counter-EDL protest in Norwich.

Diary entries – 2013

Determine to do more activism, speaking and writing and wind down the software business particularly now Google gives away for free what I used to sell. The world is changing and I can’t keep up.

Esther and I contemplate whether I should have surgery. Esther is content either way but says “do you know a pussy would suit you”! Never sure in my house whether that means a cat on the lap, or pussy between the legs!

Finally, diagnosed with Bipolar (well Cyclothymia at first, later upgraded in 2014 to first persistent MADness and then full type II BADass) after a decade of mixed depression and rapid cycling hypomanic mood swings. Began a mood map daily diary, also charting insomnia, which I’ve kept for 7 years now and has been effective at managing or at least mitigating Bipolar off meds.

With help from the Wellbeing mental health service going above and beyond the call of duty and taking months of paperwork, I actually get on the welfare and benefits system with them expressing surprise that I hadn’t applied years ago.

Diary entries – 2014

Began 2014 having been on hormones 3.5 years and have a pre-surgical consult in 3 months. New Year’s was spent having dinner with Linda Bellos, someone who 5 years later would become a leading figure in the gender critical aka ‘TERF’ anti-trans rights movement but who in 2014 was fully supportive of my transition. Rights can be gained and lost, people can change for the better or the worse.

2014 is the year I begin writing, blogging, commentating in earnest, initially via blogger and bubblenews, then wordpress and my own site. I sit and write each morning to the streaming, currently winter, sun pouring in the windows, through a dangling crystal, casting rainbows on the ceiling and compete with cats demanding cuddles or chasing the rainbows across the room.

My dreams are rarely remembered but when they are, they’re vivid and desperate for analysis. One night it’s a turbulent hour dreaming in Spanish, Hebrew and French with 3ft tall little people arguing over who was the shortest, other people with Tefal ad big eggheads – but looking like Victorian circus freak show exhibits, a random actor generator – where the people in the dream where mixed up halfway in a giant slot machine to confuse the story further, half the dream spent fetching chairs and stools for more people to join the audience in the dream including random friends from up to 28 years ago. Simultaneously exhausting and weird! I think the language elements come from discussing Ladino yesterday. The rest comes from my polyunsettled mind and probably Twin Peaks crossed with an Andalucian game show format run by gypsies.

Foul mood handling comes and goes, feel inexorably dragged backwards into a dark damp deep cave that offers no comfort, hope or solace. Agitated, angry, annoyed with stupid little inconsequential things. Curled up my inner black dog with my real-life gorgeous sensitive black cat, for what little calming I could get by tuning my heart and breath to the cat’s. Been charting on the bipolar mood scale for 6+ months now and can regularly predict the decline and fall of my moods. Still learning whether resisting or yielding is the best approach to them and/or whether to try distraction to break the cycles. The Ups feel authentically me (something not to be pathologised, as a good friend once said to me), the downs feel like something to be endured. Coming off anti-depressants was actually helpful, to feel more real, even if more volatile. Came off sleeping pills too as ineffective and too many side effects.

My first step is always to acknowledge what sort of mood I’m in, be it a high or a low. That little wedge of knowledge means I then have a small little ledge to sit on before I act (most of the time) and can consider what I’m about to say or do. I’ll admit, it doesn’t always work, but by realising that I’m feeling something, then examining what I’m feeling, allowing myself to feel it, it seems to pass a lot faster.

Lots of NHS cock-ups trying to get CBT.

I can’t imagine cognitive decline, yet in 10 years depression and insomnia have reduced my energy, memory, alertness. HRT has changed my body, muscle, stamina. Everything is exhausting.

Went to a UEA lecture and discussion on whether LGBT is exclusively a “born that way” nature and whether literature can convert someone’s sexual or gender identity. Allowing nurture and choice to be components of identity as well as genes, hormones and wiring, means also realising that books *do* have the power to influence identity and life choices, apart from just helping people to self-realise and identify with and through them. As a result I would argue that books *are* dangerous – and for that reason should be placed in *every* library!

Discussing with Linda Bellos and others as to how we could challenge the gender construct, completely, across not just feminist politics but also biological categorisation that is applied to LGBTI & other people, if not all people. Ended up in Audre Lorde territory recognising that we should not be reduced to a single label and that “we don’t live single-issue lives”.

Go to my first WOW Festival courtesy of someone’s generosity. An inclusive women and others celebration and discussion platform.

In April, I finally make it past the waiting lists to have an appointment at Charing Cross GIC with Dr Penny Lennihan. At this time, I realised that I wanted a simple and sexless labioplasty not a vagina and to be shot off the genitals that barely function physically and not all all mentally. Meantime, she raised my Oestrogen dose as like my teenage male puberty my body was not absorbing or acting on hormones typically. The next step would be a referral to surgeons and to Stuart Lorimer for follow up in December.

By now, I’ve not had sex for a year despite having a gorgeous girlfriend, and it feels right. Esther is understanding and curious whether that will change post-op and/or whether I’m avoiding sex in case it changes my mind about having the (ch)op. Feeling increasingly non-binary and applied for Mx on my bank card.

Financial struggles lead to arrears and repossession threats.

Getting around 3 hours sleep a night. Around once every three months, I get 7 hours. Back on Temazepan occasionally.

Finally, get CBT course of therapy.

Began having couchsurfers to stay – basic requirement being they must be openminded, foreign – speaking at least 2-3 languages, love cats and food.

Began a series of speaking tours around Norfolk and Suffolk with the NSFT medical director on gender, sex and mental health.

Ended up meeting Ruth Hunt and involved in Stonewall’s transgender and intersex engagements and whether they should go LGBTI.

Come Dine With Me accept me and do test filming at my home but next day decide my gender presentation will conflict with another person on the show.

First Paint Out Norwich and volunteering at it for my landlord/artist – subsequently becomes a part-time job. Good for my mental and physical health as I ended up walking 8.5 miles in 2 days and engaged with art, artists and got back into photography. JC describes me as “solid gold, bonkers but a genius”!

Involvement in Hostry Festival on literary and play panel discussion.

Annus horribilis losing many cats to awol, accident and illness – four in a week at one point. In so many ways, they are my therapy and grounding. On the valium now.

Delivered an anti-bullying talk during trans awareness week for a local sixth form and got a thank you email saying “the general consensus has been that you’re awesome, a bit mad and a real inspiration to people to be who they want to be…” – only a bit mad?

December appointment at Charing Cross GIC a relief to be progressing. Extraordinary thanks must go to Esther for supporting me and making my trips to CX feel special, booking us a fabulous posh bijou B&B with resident Bengal cat, and fantastic meal at Fino in London. More than this, the unquestioning companionship and support, whatever my decisions and delays, mean not only do I feel special but I know that I am with someone special.

Go on BBC Radio Norfolk to discuss gender, first of many interviews. Apparently a friend of a friend was driving in her car listening to the show and was surprised to hear me say “dildo” on the wireless before midday! I was struggling to remember the word dilator, the medical tool not sex toy used to maintain a neovaginal cavity in a trans woman post-surgery!

Ended the year with a Quetiapine prescription for Bipolar which I’ve no intention of taking.

Another transgender teenager takes their own life, Leelah Alcorn, her Christian parents refused to accept or allow her transition. 2014 has been the transgender tipping point but also increasingly visible giving up point for many. Will I be another statistic?

Diary entries – 2015-2019

Part II (2015) can be found here.

Mental Health & Wellbeing, Norfolk & Norwich

NSFT CQC Inspection Report – Inadequate, Norfolk & Suffolk Mental Health

28th November 2018 Katy Leave a comment

“Inadequate” is such an insipid inadequate term to describe an abject failure to manage critical mental health services and to continue over 5-years to fail to improve.

Norfolk & Suffolk NHS Foundation Trust is the seventh largest mental health trust in the UK, running over 100 community
services across 50 sites and GP practices for 1.6 million people in an area of 3,500 square miles for £227m a year. In any one month they may have 25,000 patients being seen or served. No small feat.

I’ve had great NHS care and compassion, supported by superb individuals via NSFT, Wellbeing, CMHT, Therapy services within Norfolk Mental Health – indeed CQC scored it “Good” for caring. However, the waiting lists for many are criminally irresponsible. This isn’t even my usual rant about transgender waiting lists, although they form a part of mental health. The Government austerity cuts and CCG and NSFT financial and provision managers are presumably to blame as every other trust must be facing similar challenges. Mental Health services remain grossly underfunded and in crisis. Parity for mental health services with physical health and its 18-week guarantees are years away. NSFT tops the table in the worst possible way, making national news today. Norwich topping the football – great; NSFT topping the worst mental health care trust for 5 years – fail!

“NSFT doctors first raised concerns over cuts in January 2013, as more than 500 mental health jobs faced the axe in what was known as a radical redesign of services. Senior psychiatrists warned at the time that patient safety would be put at risk and said the trust was being “downright dishonest’’ for failing to state that the cuts would have detrimental effects on patient care.” – EDP

I had to fight for well over a year to get seen, assessed (I was “lost” in the system three times but with zero response to internal complaints raised), and keep my care – which I am losing in 3 months – apparently, long-term mental health symptoms can be in “recovery” (mine can be episodically), and bipolar and anxiety disorder be signed-off.

“36 people had waited five years to be seen and 2,732 were waiting for their first contact with services… 2,400 adult patients across the trust had not been allocated a care coordinator in community mental health services.” – EDP

This is the problem when capitalist market budgeting is applied to health, and recovery models applied to long-term ailments. I prefer a “discovery” model that supports but doesn’t focus on discharge until you yourself know you are ready. Instead, a benefits and unemployment model of punishing mental health as if it was an aspect of an alleged “work-shy” culture leads to shaming those in need of its services and a seemingly deliberate or incompetent policy of actually signposting ease of access to services resulting in many people never even finding the door, let alone making it through it. Whilst I am currently being “shown the door“, having had an exit strategy meeting, others are shown the door but not let in. As many friends of mine know all to well, just as with PIP applications and appeals, if you weren’t ill when you asked for help by the time you eventually get it the very wait will have made you ill, and certainly resulted in a deterioration of any conditions you have.

Norfolk and Suffolk NHS Foundation Trust CQC Report 2018

“The Care Quality Commission found patients desperately needing care were waiting so long for help they harmed themselves or took overdoses during delays – or were being turned away completely…Staff were covering up the length of waiting lists by allocating patients to staff or running several lists whilst agreeing that nothing would be offered until space was available. And some patients had been waiting five years for help.” – EDP

During a suicidal day, several years ago, I rang the 24hr acute line at Hellesdon on a Friday night and got a locum of some form who said: “I can’t help you, I can’t access your notes at a weekend” and was generally unintelligible and useless in several other ways. I never rang them again.

With a history of suicide, I’ve learned to stay alive by building my own care package and it includes my partner, friends, Wellbeing, CMHT – the “severe and enduring mental health needs” service (keeps getting renamed!), cats, honesty, whisky, and avoiding pills as an accessible suicide kit.

I have nothing but praise for 95% of the frontline staff who’ve helped me. I would not have survived continuing mental health challenges and rebuilt some of my life had it not been for my care team who have gone above and beyond their job descriptions to support my whole wellbeing and not just my mental health. That has included helping me with referrals to physio and general health, and applying for Housing Benefit, PIP and ESA for me, when I was in no state to do so. They are my heroes. The system of cuts and carelessness elsewhere that meant I needed them has probably meant that others have had less support or are still waiting.

“We want services which are provided for those who most need care. That may mean those who don’t have as much need wait a little longer.” – Antek Lejk, Chief Exec NSFT, EADT

Clearly, they are people that carry on caring despite the system and resources they are forced to work with. It is a wonder why so many keep working and don’t leave. Indeed, NSFT has 1-in-4 unfilled nursing posts.

“A perfect storm of cuts, incompetence and stigma has seen services unravel, with people struggling to access services, being discharged too soon, and staff under intolerable pressure with unmanageable caseloads. Following a savage real-terms budget cut, the number of doctors has been reduced by 51 (around 25pc) and the number of nurses by 163 (1 in 8) compared to when the trust was formed in 2012, while referrals have rocketed. The number of patients referred but still awaiting their first contact is 2,732 (as of October 12). That’s a lot of people in distress, without support.” Emma Corlett, EDP

When the CQC interviewed me for a previous report, I said that continuity (and accessibility) of care were critical as my care team kept getting changed or staff going off long-term sick themselves (probably stress at work based).

What happened? Three months later they shuffled the deck chairs (a “radical redesign” no doubt) and changed my care-co again, and I’ve had 3 more since. NSFT is that Titanic on which the deck-chairs get regularly rearranged rather than addressing the approaching iceberg of yet more service-users drowning in a cold heartless sea where the lifeboats are knocked-off the list of necessary equipment to save money.

“The key to keeping people safe is a trusting relationship. How can that be possible with repeated, persistent disruption. Worse of all, it’s deliberate disruption as like you describe, inept managers with a lack of a clue about what else to do opt to do another reorganisation, over the heads of staff and in some cases not even bothering to tell the service user.” – Emma Corlett, Nurse and Norfolk Councillor

Confidence & Motivation, Human Rights

Past and Present Inspiration to be the Change that makes a Difference

28th March 2018 Katy Leave a comment

The inspiration of dreamers

One of the first records I bought was Imagine by John Lennon and like him, I’ve always been a dreamer. I’ve always believed the world could be a better place. His life like other great dreamers was cut short by violence.

“Imagine all the people living life in peace. You may say I’m a dreamer, but I’m not the only one. I hope someday you’ll join us, and the world will be as one.” – John Lennon

Martin Luther King had a dream, was also shot dead, and whilst he precipitated change in his country, yet the work goes on. Black Lives Matter shows the need to keep at it, that progress is not instant but builds a head of steam and gathers momentum. It took 46 years from MLK’s “I have a dream” speech until Barack Obama became the first black President.

Eight years before MLK’s speech Rosa Parks refused to give up her seat to a white man on an Alabama bus back in 1955. Nine months before Parks, a 15-year-old teenager, Claudette Colvin did the same. These women had had enough of being pushed around and treated as second class because of both the colour of their skin and their sex – double discrimination and oppression, because “we don’t live single issue lives” – Audre Lorde.

The Tipping Point

The 1969 Stonewall Inn riots that kicked off the LGBT Pride movement were actually the third resistance event in a US city against Police homophobia and transphobia (LA, 1959; San Francisco, 1966), but the tide had turned. The people fought back.

Other movements like #MeToo, #GenderPayGap, and #MarchForOurLives – one of the biggest youth protests since Vietnam, create momentum and a tipping point when people say enough is enough.

What inspires me to keep going in my activism is both the history of past examples: Lennon, MLK, Rosa Parks, and Audre Lorde:

“I am not free while any woman is unfree, even when her shackles are very different from my own.”

But also the role models of now. Like Parkland, Florida’s amazing Emma Gonzalez or Malala Yousafzai:

“One child, one teacher, one book, one pen can change the world.”

“If one man can destroy everything, why can’t one girl change it?”

We haven’t arrived, there is more to do

We haven’t yet reached the tipping point on, for example, FGM, for which there’s not been a single successful prosecution yet in the UK.

For a supposedly developed, civilised world we are in a mess. There remains so much more to be done on people trafficking, on equality and diversity, on mental health compassion and advocacy, on welcoming refugees and migrants, on giving everyone similar educational opportunities, on ending gun violence.

“Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has.” – Margaret Mead

Be different, be the one and not the many, and make a difference

Being able to reflect on history means I know that change can and does happen, and each time it began with one person. A past relative of mine wrote the speeches for William Wilberforce in the UK to end slavery, another worked as a spy and interpreter alongside Tito in Yugoslavia with the resistance against the Nazis.

We can make a difference, and it begins often with a small act of resistance and others then joining you. Be the person who says “enough is enough”, and “now is the time”.

We can be the change:

“If we could change ourselves, the tendencies in the world would also change. As a man changes his own nature, so does the attitude of the world change towards him. … We need not wait to see what others do.” – Mahatma Gandhi

And we should not wait:

“Change will not come if we wait for some other person or some other time. We are the ones we’ve been waiting for. We are the change that we seek.” – Barack Obama

Mental Health & Wellbeing, Quotes & Sayings

New Year Reflections on Light and Darkness; Health, Wealth and Madness

1st January 2018 Katy Leave a comment

As New Year 2018 breaks, and on a bright light January mid-winter dawn at that, I realise that 2017 has been a year of two halves or even four quarters, much like the seasons. I’ve diaried most of my non-married adult life, including the last 11 years. Along with an insomniac’s sleep spreadsheet and a bipolar mood diary, I’ve a fairly good idea of my moods and their seasons.

“I will love the light for it shows me the way, yet I will endure the darkness because it shows me the stars.” – Og Mandino

Light and Darkness

I’m going to pepper my reflections with random quotes about light and darkness, which diurnally deliver some of the starkest contrasts of daily existence, but which are at their hardest to endure when the nights are sixteen-hours long and the days excruciatingly short. And particularly hard, when one’s mood is low, insomnia debilitating, leaving one drawing the curtains at midday and getting up as the sun sets in deepest winter. I long for the lengthening days of 2018 as it progresses to June’s summer solstice.

“Every human being is a mixture of light and darkness, trust and fear, love and hate.” – Jean Vanier

MAD, BAD, and SAD

For someone who is or has Bipolar Affective Disorder (BAD), with an annual accretion of Seasonal Affective Disorder (SAD), it’s only appropriate that I confess to also being MAD. Whilst calling someone mad is deprecated, it is thoroughly modern to have a Mood Affective Disorder including various depressions, bipolar disorders, and anxiety disorders – yes I have a GAD (Generalised Anxiety Disorder) too. My OCD seems to be collecting three-letter mental health acronyms!

“Where there is much light the shade is deepest.” – Johann Wolfgang von Goethe

The low moods are so deep that you feel your world is going to crush you like suffocating under a mountainous avalanche of rocks and soil or at the depths of the ocean as the air runs out and the pressure crushes your lungs.

“The sunrise and sunset shows us that in life there are ups and downs. There is light and darkness.” – Debasish Mridha

Whilst many of these seriously affect my wellbeing I also regard them as part of the range and spectrum of personality and psychology. So whether one has the clinical diagnosis or not (I do), one is not one’s label, or doomed by it, since we all experience anxiety, low mood, and the seasons, to varying degrees. The difference is the degree to which we suffer and are immobilised in one’s ability to function in life, hold down a job, pay bills, or maintain a healthy functioning loving relationship.

“Light isn’t always buoyant and shadows aren’t always despair; yet both, I believe, are limitless in lessons that they share.” – Carolyn Riker

Housed but feeling temporarily not at home

The last quarter has been one of my worst in some six years. Brought low by overexertion and exhaustion, insomnia, arthritis, whiplash, chronic anxiety and panic attacks over benefits renewals and appraisals, and a near six-month long house rewire that upended my comfort nest, I became uprooted, homeless within my own home.

“The most precious light is the one that visits you in your darkest hour!” – Mehmet Murat Ildan

Yet, I appreciate that I have a roof over my head, just enough flexible work to meet the difference between housing benefit and rent, enough security from family on months I’m short, to avoid a past history of extensive rent arrears and three eviction notices and an unsecured debt-pile equivalent to a middle-class mortgage without any house to show for it.

Others, in worse situations, have seen a doubling of people living rough since 2010, alongside a 50% cut in homelessness funding, a rise in food bank use, people losing their DLA/PIP assessments, being stuck on six-week Universal Credit delays, and seeing mental health services in crisis and special measures as they fail to match ‘service user’ needs. Austerity has worsened our wellbeing and failed in its fiscal justification.

Suicide Safety Net

My own darkness arrived at a time of maximum therapeutic support. I’d just managed to get a second package of 6 therapy sessions within a few years. The first took 3 years of asking and the second, around 6 months. But even with weekly therapy (extended to fortnightly for a longer period), bi-monthly care team support, regular mental health team check-in calls, a loving longterm partner, and a veritable army of support cats – I still suffered 4 days in 3 months where I was suicidal.

“Always surround yourself with friends that have plenty of light in them. That way, you will always have candles around you when days are dark.” – Suzy Kassem

Getting through the immediate seemingly life-threatening panic or manic anger or the aching raw bawling sadness has taken every ounce of my energy, and drawn on the understanding of my lovely partner in ways that I never wanted to. I nearly broke my girlfriend! She is, however, heroic in her ability to separate my needs (without being needy) from any responsibility to solve or salve, only to be a supportive companion and a candle in my darkness.

“Look at how a single candle can both defy and define the darkness.” – Anne Frank

Fortunately, due to my most serious past suicide attempt five-and-a-half years ago, I’d ensured that my house was empty of the means to take my life (via pills at least). It didn’t stop me from feeling my fragility and emotional rawness of having the same suicidal ideation but a better safety net in place. Driving is dangerous when one feels the power to take one’s own life beneath the foot pedal on an angry with the world day.

Not so Superman/girl

My superpowers have more than once met their psychosocial Kryptonite. I say psychosocial because I’m well aware that it is my psychological wiring and emotional responses to social and financial situations that trigger my darkness, anger, and powerlessness.

Surviving rather than thriving is a temporary reward and respite. Living to face the terrors and panic attacks of another day. That is why dying feels like such a tempting relief, the only way to take a day off.

“And I find it kinda funny, I find it kinda sad
The dreams in which I’m dying are the best I’ve ever had” – Mad World

Faerie lights dancing in the relfections of the lens

I have good days too, and in-between average days, that are nonetheless relief days. Being bipolar I’m never far from depression, nor elation. So I respect both. I can swing from scarily suicidal to aesthetic appreciation of art, beauty, food and kittens in just hours. Sadly, my rapid cycling rollercoaster can look fine, be engaged, and yet hours before or later be considering suicide or lying in the bath wondering what it would be like to drown in nihilistic comfort before the warm welcoming water got cold.

“If we never experience the chill of a dark winter, it is very unlikely that we will ever cherish the warmth of a bright summer’s day. Nothing stimulates our appetite for the simple joys of life more than the starvation caused by sadness or desperation. In order to complete our amazing life journey successfully, it is vital that we turn each and every dark tear into a pearl of wisdom, and find the blessing in every curse.” – Anthon St. Maarten

Life is full of light and dark, morning and night, summer and winter. Contrasts that make the extremes, well, more extreme. The highs are ecstatic and the lows are the end of the world.

“Life isn’t just about darkness or light, rather it’s about finding light within the darkness.” – Landon Parham

Yes, company, compassion, communication, the comfort of friends, are a solace though not a solution during those lonely days, weeks, months, and sadly, years. I’ve been anxious for 45 years, depressed for 15, bipolar (officially, at least) for 5. But, I’ve been alive for 50 years, continually by the thin thread of tenuous determination to live another day – despite several attempts, and many more close calls to end it.

“Why not dare yourself to become a shining positive light where darkness is the only thing known?” – Edmond Mbiaka

Getting through the night

Closing the curtains in winter at 4pm and waking at 4-5am some 3-4 hours before sunrise, leads to hours of wakeful darkness, and how to endure it. BBC iPlayer Radio plays are often an answer or cricket match commentary from Australian timezones.

The constant onslaught of dark days and anxious early mornings is like being pelted with a slinger’s stones or archer’s arrows from an infinite quiver where each one won’t kill you but like a death by a thousand cuts will make you weaker and even less likely to get up and face the next day.

My 50 years, which feel like 500 at times, have taught me a healthy respect for mental wellbeing and to take pleasure in the little things like the fact that I woke up well today, and that it wasn’t raining. The longest night is past and longer days are around the corner, the light is returning, spring is coming.

I guess getting through the night is my daily version of other people’s getting through the winter. My rapid cycling mood means I experience the seasons on a quotidian basis. But I also learn from nature, that as sure as spring follows winter and morning follows night, so too will my mood lift or circumstance change.

“I restore my book to the bracing and buoyant equilibrium of concrete outdoor Nature, the only permanent reliance for sanity of book or human life.” – Walt Whitman

Today, I walked among the trees, chatted with my partner, ate simple but tasty food, and stroked cats – lots of cats. I’ve survived another day.

Mental Health & Wellbeing, Norfolk & Norwich, Politics & Economics

Lies, Damned Lies & Tory Jeremy Hunt’s Mental Health NHS Statistics

29th October 2017 Katy Leave a comment

Lies, Damned Lies & Mental Health Statistics

This month saw World Mental Health Day. For the other 364 days of the year, we are forgotten. Austerity Britain has affected mental health services more than most. Despite promises to ringfence the NHS and bring parity between physical and mental health, this has not happened. Instead, beds have been cut, jobs have not kept pace with population growth, and my own trust, NSFT, has been placed back into special measures again, after being the first mental health trust in the country to be sanctioned in this way by the Care Quality Commission (CQC) in February 2015.

Mental health awareness and NHS service provision improvements are sorely needed as referrals have risen 20% in Norfolk and Suffolk, but staffing and beds have been cut. Complaints, locally, have risen from 430 to 592, 2013-16. The latest CQC report criticised inadequate staff and bed levels but praised staff the caring attitudes of staff as ‘good’.

The recent Stevenson/Farmer ‘Thriving at Work’ report has demonstrated the need to promote mental health at work due to its annual near £99bn cost to the UK economy.

2010-20 will be the most austere decade in NHS history
2010-17 UK population rose 5%, mental health staff up 0.87%
2011-14 33% rise in Police cases with mental health component
2010-13 56% rise in self-harm and suicide
Mental health at work costs UK economy up to £99bn
Entitlement to be seen <18 weeks applies to mental health too

A week ago, BBC Radio Norfolk ran a mental health week focus with Stephen Bumfrey featuring it each afternoon, and coming together with Nick Conrad, Sue Tebble and myself, on Friday 20th, for an hour-long special. (iPlayer episode – 2hr 32m in)

On Radio Norfolk’s Matthew Gudgin programme, the BBC’s Bob Carter challenged Theresa May to apologise to the people of Norfolk and Suffolk for having the worst mental health trust in England. Listen to the interview below:

Theresa May

During a recent visit to Archant, home of the EDP, in Norwich, the Prime Minister said:

“overall if you look across the country there is a good record of actually being able to move trusts out of special measures” – Theresa May

This makes the failure to resolve the local NSFT crisis all the poorer. Patients, or the politically correct – ‘service users’, have complimented the staff but criticised the system, waits, and other failures. Patient deaths and out of hospital suicides have increased whilst beds and budgets have been cut. Hundreds of patients were sent out of county owing to the lack of beds, up to 225 miles away!

In 2012/13 the trust reported 53 unexpected deaths, 105 in 2013/14 and 14/15, 139 deaths, rising again in 15/16 to 158, and 140 in just 9 months of 16/17. When standardised for age it is above the average for England. The figures have risen across all regions during NHS austerity under this government, from 47 per 1,000 to 59 in England – up 25%, but from 44 to 66, a rise of 50% in Norfolk & Suffolk.

Jeremy Hunt

Jeremy Hunt, the Health Secretary, has boasted that provision for mental health has “got better” and that he has increased staffing by 30,000 posts. The reality of the lie, and statistics do indeed damn him, is that 4,100 mental health nurses, 4,596 mental health trust beds, have been cut, and just 692 extra staff employed – an increase of just 0.87% over seven years, despite population growth of 5% during that time – so, in other words, a cut!

“Although NHS funding is rising in real terms, current plans mean that 2009/10 to 2020/21 will be the most austere decade in NHS history. Total spending on the NHS in England increased by an average of 1.2% a year under the 2010-15 coalition government (0.9% for the UK), and is set to increase at the same rate under the current Conservative government. Between 2009/10 and 2015/16, spending increased from £109.1bn to £119.0bn and is planned to rise to £123.2bn in 2020/21. This growth rate of around 1% is below the historical average for the UK of 3.7% per year.” – The Health Foundation

In Norfolk and Suffolk, primary care mental health referrals rose 20% between 2013-16, nearly 7 times faster than the population increase.

Wider Societal Impact

Norfolk has a pioneering mental health within Police HQ service, but nationally, there has been a 33% increase in cases with a mental health component 2011-14. As much as 40% of Police time is spent dealing with mental health-related issues.

Eighteen Weeks, as if!

Under the NHS constitutional pledge, patients have a right to be treated within 18 weeks of referral, including mental health.

“the new waiting time standards will be as follows: 75% of people referred for talking therapies for treatment of common mental health problems like depression and anxiety will start their treatment within 6 weeks and 95% will start within 18 weeks.” Pledge of 2014 to be delivered by April 2016.

Yet, the wait for some treatments can be more like 18 months. Just try requesting something more complex than CBT or other less time-limited ‘quick-fix’ therapies. IAPT referrals seen within 6 weeks were apparently 93-96% in Norfolk and Suffolk.

My personal experience, and that of several friends, has been of much longer waits. Calling the acute care line at weekends can result in complete ignorance or lack of access to your medical records. Support lines have historically been cut. People fall between the cracks, and I know too many people no longer with us due to mental health funding and systemic failures.

Discovery or Recovery

Discharge centred mental health, is solution based, with as much an an economic imperative as a wellbeing focus.

“securing a minimum of 50 per cent recovery rate from treatment” – NHS

Mental health in Norfolk has a Recovery College, a course-based approach to improving wellbeing. I prefer to see it as a discovery-centric way of improving self-management with community support. Some mental health issues do not just resolve, yet the NHS insists on “developing a recovery culture” (p13) in mental health which fails those with long term or lifetime conditions.

74% of NSFT patients represented with mental illness symptoms within 6 months, compared to a national figure of 63% (2015 data).

IAPT (Improving Access to Psychological Therapies) approaches such as CBT serve best those with mild to moderate conditions, whereas moderate to severe need additional and more specialised help, as e.g., with OCD.

Suicide Risk

Between 2010-13, there was a 56% rise in self-harm and suicide across 52 NHS mental health trusts. It has been suggested that the over-capacity of up to 138% and staffing cuts has increased the risk of incidents.

I find the language, even if it has a clinical meaning, and the reality of response to people at risk of suicide, horrifying. The provision of “low level psychiatric support” was referenced in a Norfolk and Suffolk response it its higher than average suicide rate:

“There is a gap between the Wellbeing Service, the counsellors employed by GP practices and what is on offer via the mainstream mental health services. Suicide rate in Norfolk & Suffolk is high. GP referrals to MH are only accepted 20% of the time. GPs are left to manage risk the rest of the time.” – NSFT, pp11-12

The apparent aim is a “reduction in referrals to mainstream mental
health services by offering more low level psychiatric support in primary care.”

Care not Cuts

What worries me, is the low level of funding, of staff, of beds, and the cure rather than care attitude of the system. In contrast, the caring attitude of the staff is to be praised, and they need additional in-work support themselves to be able to deliver services under such tight austerity conditions.

Uncategorized

World Mental Health Day improving wellbeing for all of us

10th October 2017 Katy 1 Comment

The shift from pathologising terms like mental illness, disorder, nervous breakdown, has been gradual, and we are seeing more reference to mental health and wellbeing, differences, spectrum diversity etc. This has been a long time coming, since from 1-in-4 to 1-in-3 of us will experience a mental health condition or episode in our lives, if not more of us.

What keeps us from giving up?

The very tools of survival that I’ve learned to use to attempt to thrive rather than just die or dive back under the duvet covers actually aid all of us. They’re very basic, and not pharmaceutical, though some are chemical – or at least release the endorphins (endolphins as I like to call them) and oxytocin type chemistry that aids wellbeing.

When speaking at an event in London last weekend, I was asked how, “how do you keep going, how do you remain strong?” The answer, for me at least, is that I’m stubborn! Practically speaking, though, I talk and walk, and when it’s going well, I walk the talk.

Caring Talk Saves Lives

I talk to people, I talk to myself, to my thoughts – giving them voice and an opinion (but no power) at the table in my head, and I talk to my diary. Well, I write, I reflect, I repeat – yes, I realise that circumstances, feelings, moods, anxieties, they come round in repeating circles, and I begin to recognise that I survive, that I’m still here, despite my best efforts to end that.

I also walk, I get outside as often as I can. Although, that’s not often enough as insomnia and mood disorders often keep me in bed half the day. Inertia destroys all my best intentions. Last weekend, though, I managed something rare, to swim twice and walk 5 miles in a day, taking in my environment and the beauty of the world around me. Fresh air and exercise help, if only we can kick the black dog off long enough to get outside.

Being bipolar, my mood can shift drastically and quickly in the same day. I’ve learnt to be kind to myself, and to forgive, be in the moment, and treat or reward myself for getting stuff done that would otherwise pile up and compound my anxiety.

Laughter is good medicine

I’ve also learned to both respect my mental health conditions, and to healthily take the piss out of them – not others, not the suffering, not the issues, but to occasionally make light of them so that they have less of a hold over me.

Speaking of laughter – Stephen Fry has said of suicide:

“There is no ‘why’, it’s not the right question. There’s no reason. If there were a reason for it, you could reason someone out of it, and you could tell them why they shouldn’t take their own life”

He is spot on. Although every story is different, mine nearly ended 5 years ago, but I am happy to be here now.

Seek help

Seeking help early before one is neither in the mood or position to seek help is important. Sadly, waiting lists are such that it can be a year or more wait for short dose CBT and that is often such a sticking plaster rather than a long-term improvement to wellbeing or coping.

I’m back in therapy for the second time in ten years, and it feels incredibly healthy. It’s not a sign of failure but of active involvement in one’s own health management.

MAD, BAD, GAD, and quite possibly SAD

I seem to collect three-letter-acronym conditions, so that I’ve been diagnosed with multiple Affective and Anxiety Disorders. Their intensity varies and sometimes I’m the boss, sometimes they try to be. Again, a diary helps me see that I do bounce (well hobble) back eventually, and they never, any longer, keep me down permanently.

Again, a diary helps me see that I do bounce (well hobble) back eventually, and they never, any longer – I hope, keep me down permanently.

Anniversaries, Identity, Mental Health & Wellbeing, Music & Video

Kurt Cobain, RIP in memoriam; On Being Yourself and too much Empathy

5th April 2017 Katy Went Leave a comment

Being Yourself by Kurt Cobain

Kurt Cobain - the Day the Music Died — Kurt Cobain – the Day the Music Died, 1994

Kurt Cobain, was born in 1967, and died 5 April by taking his own life, back in 1994, aged just 27. He flitted between narcissism, empathy, love and pain, trying to enjoy his life and simply be himself, but not feeling it, over-feeling everything else instead. He’d have been in his 50s now, just a month older than me. Some years ago, I also attempted suicide, after a lifelong struggle with identity and feeling too much.

Whilst Cobain is in nirvana now, where are we 20+ years on? Still struggling for identity, as individuals, and a generation? Cobain struggled with being seen as the voice of a generation. His band, Nirvana, was labelled “the flagship band” of Generation X, and Cobain himself proclaimed as “the spokesman of a generation”, something that did not sit well with him.

Dear Kurt—We miss you.

image: Michael Levine pic.twitter.com/U4uRE7IMuA

— Nirvana (@Nirvana) April 5, 2018

Faking it, Being Someone Else

“Wanting to be someone else is a waste of who you are.” – Kurt Cobain

Cobain was trying to work out how to be himself amidst the pressures of fame, parental divorce, love and loss, and mental health conditions including bipolar mood swings between depression and mania, as described by his cousin, a nurse, who noted his childhood diagnosis of ADHD and as an adult Bipolar (unconfirmed?). Several relatives had also committed suicide in the same way.

He struggled to feel what he thought he was meant to feel or enjoy. He couldn’t fake the enjoyment of fame, or life itself.

“I’ve tried everything within my power to appreciate it” – Kurt Cobain, suicide note

“The worst crime is faking it.” – Kurt Cobain

Empathy and Fame

He mentioned empathy four times in his suicide note, and the struggle between feeling too much and yet not feeling anything – or what he thought was the right thing, at all.

“I think I simply love people too much, so much that it makes me feel too fucking sad. The sad little, sensitive, unappreciative, Pisces, Jesus, man, ‘Why don’t you just enjoy it?’ I don’t know!” – Kurt Cobain, suicide note

Nirvana sold over 25 million albums in the US, and over 75 million worldwide, but fame and success do not fill the void. He hated the fame, and was envious of Freddie Mercury and how he seemed to relish it.

“We’re so trendy we can’t even escape ourselves…I really miss being able to blend in with people.” – Kurt Cobain

Reading, Writing & Lyrics

Cobain “occasionally took refuge in the counter-cultural writings of authors such as William S. Burroughs, Jack Kerouac, Samuel Beckett and Charles Bukowski”. Yet, described himself as having the “tongue of an experienced simpleton”, and hating the Freudian analysis that people subjected his lyrics to. Another reason, to explore him in his own words, not the interpretation of others.

“I’m not well-read, but when I read, I read well.” – Kurt Cobain

“I like to have strong opinions with nothing to back them up with besides my primal sincerity. I like sincerity. I lack sincerity.” – Kurt Cobain

Sexuality

Kurt Cobain was seemingly bisexual, though gave mixed interviews on that side of his personal life, calling himself “gay for a while” yet “more sexually attracted to women”. As a teen he was arrested and fined $180 for graffitiing “Homosex Rules” on a wall. He once said, “I started being really proud of the fact that I was gay even though I wasn’t.” It is not clear if he ever consummated this part of his persona, despite saying:

“If I wouldn’t have found Courtney, I probably would have carried on with a bisexual lifestyle.” – Kurt Cobain

Whilst Generation Y, born early 80s to 2000, followed Cobain’s Generation X, we are now on the Gen Z cohort, born since the Millennium. A group happy to be neither gay nor straight, to question gender and express it fluidly.

Women’s Rights

Cobain wrote about women’s rights in his songs, including concerning the rape of a 14yo girl after a concert (not one of his).

“I definitely feel closer to the feminine side of the human being than I do the male – or the American idea of what a male is supposed to be.” – Kurt Cobain

“He was himself”

Canadian musician and writer, Dave Bidini, in an article for the National Post entitled “Kurt Cobain, who died 20 years ago today, wasn’t a hero, martyr or vampire. He was himself” ended with this comment:

“He looked like he didn’t care (because he didn’t) … His arms hang down and he turns sideways from the crowd, as if he’s trying not to be seen, even though 20 million people have their eyes trained on him. In a society where ‘bringing it’ and ‘all or nothing’ and ‘going for it’ are sicknesses pumped by fools who aspire to drive people apart rather than draw them together, Cobain’s sense of oblivion was, in a way, brave and confrontational, and that’s why he cracked even the hardest edifice and ate through misplaced pop culture like a creeping disease. In the end, he made an enormous impression for someone who wasn’t even there.” – Dave Bidini, National Post

Cobain did escape, “Rather be dead than cool”, others need not take that route if they can follow his other wisdom, to be yourself and find someone you can be yourself with and talk to.

“It’s better to burn out than to fade away” – suicide note

Remember him alive though, here’s an awesome unplugged hour-long Kurt Cobain MTV concert in NYC November 1993 just months before his suicide, my favourite line of which was “like this is my third cup of tea already” – how Rock’n’Roll!

I will remember him, as much for the angst music of a tortured soul, as the desire to find and be himself, a journey I am also on, aren’t we all to a degree?

“I’d rather be hated for who I am, than loved for who I am not.” – Kurt Cobain

Books & Literature, Comedy & Humour, Film & Theatre, Memorials & Obituaries, Mental Health & Wellbeing, Quotes & Sayings

RIP Carrie Fisher – Actor, Author, Mental Health Advocate, in her own words

27th December 2016 Katy Leave a comment

Carrie Fisher, died 27 December 2016

Carrie Fisher will be mostly remembered for being Princess Leia in Star Wars as the Space Western princess with a gun and rapid riposte to Harrison Ford’s Han Solo when he needed a put-down. It didn’t stop them having a recently revealed off-screen romance. Also, off-screen was her battle with the darker forces of addiction and bipolar mental health. Her website records her in the way she’d prefer to be remembered as an “actor, author” and shamelessly, a “mental health advocate”, her site listed mental health resources, and she was active in promoting mental health awareness.

Carrie Fisher, The Princess Diarist (2016)

For the record, she starred in 44 films from Shampoo (1975) to Star Wars: Episode VIII (2017), wrote 7 books, and well over half-a-dozen plays, scripts and screenplays. More a signature action than her Leia buns and Avengers/Charlie’s Angels-style gun-aloft pose, her middle finger was often shot up at the press. She was a hero for her honesty, humour and heart, the media needs to treat mental health better.

As someone who battles and “sur-thrives” with Bipolar Affective Disorder, aka manic depression, myself, I find so many echoes in her statements on mental health, and her activism in helping others through honesty and sheer guts – or clitzpah, female “courage bordering on arrogance”, as a friend puts it.

RIP Carrie Fisher 4 fighting the patriarchy, sexism, #bipolar #mentalhealth, addiction & Darth Vader, may the force be with her in death

— Katy-Jon Went (@katyjon) December 27, 2016

A fitting tribute is, therefore, to remember her in her own words:

Carrie Fisher Quotes – In Her Own Words

“I really love the internet. They say chat-rooms are the trailer park of the internet but I find it amazing.”

On Writing as Therapy

Carrie Fisher, Shockaholic (2011)

“I have a mess in my head sometimes, and there’s something very satisfying about putting it into words. Certainly it’s not something that you’re in charge of, necessarily, but writing about it, putting it into your words, can be a very powerful experience.”

“I always kept a diary – not a diary like, ‘Dear Diary, we got up at 5 A.M., and I wore the weird hair again and that white dress! Hi-yeee!’ I’d just write.”

“Writing is a very calming thing for me.”

I can echo those thoughts, totally! Writing slows my racing pacing thoughts down, coming up with the language that accurately and emotional reflects my thoughts on myself, life, the universe and everything, is a process that is cathartic, creative, and better than CBT.

Her humour

Whether scripted stand-up comedy or unscripted ad-lib, Carrie was quick witted, sharp, funny and could turn the tables on an interviewer. A vital skill in the harsh world of Hollywood and media criticism.

“I brought along Gary” (Carrie Fisher’s dog) “because his tongue matches my sweater” … “I think in my mouth so I don’t lie” … “what music makes [weight loss] worthwhile?” Not to mention some beautiful flirting with “DNA jackpot” GMA’s Amy Robach!

The humour, the jokey OCD matching, the flirting, she was my kind of inappropriate unboundaried, humourous getting-into-trouble, woman.

“There’s no room for demons when you’re self-possessed” via Twitter (2014)

“I googled myself without lubricant. I don’t recommend it.” on David Letterman (2009)

“Sometimes I feel like I’ve got my nose pressed up against the window of a bakery, only I’m the bread” – Postcards from the Edge (1987)

“Pure lust is an oxymoron” via Twitter (2016)

On Life and Being Herself

“I am a spy in the house of me. I report back from the front lines of the battle that is me. I am somewhat nonplused by the event that is my life.”

“I don’t want my life to imitate art, I want my life to be art.”

Again, one feels like an actor in one’s own drama, there is sometimes a feeling of distance from the actions one takes, as if one were only playing a part, however grand a role.

On Body, Weight and Aging

“I don’t like looking at myself. I have such bad body dysmorphia.”

“I think of my body as a side effect of my mind.”

“I’m in a business where the only thing that matters is weight and appearance. That is so messed up. They might as well say ‘Get younger,’ because that’s how easy it is.”

“There were days I could barely struggle into a size 46 or 48, months of larges and XXLs, and endless rounds of leggings with the elastic at the waist stretched to its limit and beyond – topped with the fashion equivalent of a tea cozy. And always black, because I was in mourning for my slimmer self.”

“…when I do lose the weight, I don’t like that it makes me feel good about myself. It’s not who I am.”

“Along with aging comes life experience, so in every way that is consistent with even being human.”

On Mental Health & Bipolar Mood State

Carrie Fisher, Wishful Drinking (2008)

“I’m very sane about how crazy I am.” – Wishful Drinking, (2008)

“I now get awards all the time for being mentally ill. It’s better than being bad at being insane, right? How tragic would it be to be runner-up for Bipolar Woman of the Year?” – Wishful Drinking, (2008)

“Anything you can do in excess for the wrong reasons is exciting to me.”

“I have a chemical imbalance that, in its most extreme state, will lead me to a mental hospital.”

“Drugs made me feel more normal.”

“I went to a doctor and told him I felt normal on acid, that I was a light bulb in a world of moths. That is what the manic state is like.”

“I have two moods. One is Roy, rollicking Roy, the wild ride of a mood. And Pam, sediment Pam, who stands on the shore and sobs… Sometimes the tide is in, sometimes it’s out.”

The manic mood ride that is Roy and the pessimistic panic that is Pam, is very familiar. I’ve not heard anyone else echo my experience of drugs making one feel normal. I tried weed, ecstasy and minor drugs like that, even smoking and drinking, but they didn’t do anything for me, indeed ecstasy made me responsible, hyper-sensible!

On Surviving and Thriving

“Ive [sic] stopped trying to take things a day at a time. I now take 2 or 3 days at once—hoping it’ll cause a blur effect & I might look younger.” via Twitter (2015)

“I don’t want to be thought of as a survivor because you have to continue getting involved in difficult situations to show off that particular gift…”

“If anything, my mother taught me how to sur-thrive. That’s my word for it.”

Carrie Fisher- unafraid to talk about #mentalhealth pic.twitter.com/ry7N2rsLKJ

— Dr Ben White (@drbenwhite) December 27, 2016

Boundaries and Bad Judgements

“The world of manic depression is a world of bad judgment calls.”

“I’ll never be known for my work with boundaries.”

“Mistakes are a drag, because you get in the area of regret and self-pity.”

Fortunately, it’s not all bad boundaries and manic mistakes, and the following day come-down into reality and realisation that one has overstepped, overdrawn, overdone it, and occasionally overdosed. Manic can be fun, or at least hypomanic can, with just enough awareness to feel empowered, energied, extrovert and not yet into the territory of relationship, finance and employment self-destruction.

“The manic end of is a lot of fun.”

She was the brightest, funniest, bravest, kindest, cleverest and sweetest person I ever knew. A crushing blow to lose @carrieffisher

— Stephen Fry (@stephenfry) December 27, 2016

On acting as if all is well

“One of the great things to pretend is that you’re not only alright, you’re in great shape. Now to have that come true – I’ve actually gone on stage depressed and that’s worked its magic on me, ’cause if I can convince you that I’m alright, then maybe I can convince me.”

“Stay afraid but do it anyway. What’s important is the action. You don’t have to wait to be confident. Just do it and eventually the confidence will follow.”

“I’m fine, but I’m bipolar. I’m on seven medications, and I take medication three times a day. This constantly puts me in touch with the illness I have. I’m never quite allowed to be free of that for a day.”

She is free now, “drowned in moonlight, strangled by my own bra“. Whilst she was “nonplused” about her life, we are far from nonplused at her death and feel the disruption in the force in 2016, which has been a traumatic year of loss. RIP Carrie, Princess, Queen, General and very human being, “May the Force be with you.”

Postscript: Carrie Fisher’s mother, Debbie Reynolds, star of Singin’ in the Rain, died aged 84 of a stroke within 24 hours of Carrie.

Mental Health & Wellbeing

International Mens Day, Mental Health and Male Suicide Rates

20th November 2016 Katy Leave a comment

International Men’s Day, 19 Nov

Yesterday was #InternationalMensDay (IMD) – not a simple awareness retaliation day to Women’s Day but an acknowledgement, since 1999, that privilege and difference are often relative and contextual. Society does make it harder for men to talk, share, open up, acknowledge depression, career pressures etc. Men’s mental health is such that suicide can be their biggest killer, indeed, silence kills. Yes, feminists can argue that every day is men’s day, but in the particular sphere of suicide, there needs to be a spotlight on men and the fiscal and fragile crises that so often masculinity prefers to conceal. Similarly, whilst young LGBT people have high suicide risks, one group most prone to it is white men aged 85+ whose suicide rate in the US is six times the national average, closely followed by Native American males.

World Suicide Prevention Day, 10 Sep

Men are more than 3 times as likely to take their lives as women (4 times in the USA), with rates of 16.8 per 100,000 for men and 5.2 per 100,000 for women in the UK. Women try suicide more than men, but male suicide methods are more likely to result in death.

The highest suicide rate in the UK in 2014 was for men aged 45-49 at 26.5 per 100,000 with the North East of England most vulnerable. Whilst the overall suicide rate fell 1981 to 2007, austerity and cuts to services have seen annual rises since with the male rate last year, the worst since 2001.

385 men-a-month take their own lives in the UK; it is even worse in the USA, at 2759, 1.5x more likely per capita. In Japan, it is the leading cause of death in men aged 20-44.

Even so, Japan is not the worst. Lithuania is twice as high at 51 per 100,000 and Guyana at 71 per 100k is ashamedly the world ‘leader’. The USA ranks #46 and the UK #101 for male suicide.

Not a laughing matter

World Toilet Day, access for all by 2030

Men’s mental health is not a joke. November 19 was also World Toilet Day, and whilst jokes about leaving the toilet seat up abounded on twitter – including by me, whilst not directly aimed at men’s health, sanitation and sanity are not laughing matters when one billion lack a toilet and half-a-million men each year die by suicide and many millions more try. Whilst depression and mental health issues account for the majority of cases, for men in particular, financial and career pressures are significant factors. Education, because it brings with it greater economic opportunities and perhaps better communication skills, is a reducing factor, except among certain professions whose jobs give them access to pharmaceutical drugs.

Learn to Talk & Listen

The old Second World War adage and poster campaign that “Careless talk costs lives” could be turned on its head – “Learn to talk and save lives”. Partners and friends of men in crisis, similarly, need to learn to listen and not diminish the pressures that drive them to drink, depression and suicide. Suicide, at one every 40 seconds and on the rise (predicted to be one every 20s by 2020) is preventable is we make it ok for everyone to talk about mental health, men in particular, and we also end the worst effects of austerity where health and welfare cuts are exacerbating the problem and denying access to solutions.

Writing, speaking, lecturing, talks, humour, comedy, quotes, inspiration, motivation, mental health, disability, LGBTIQA+, equality, human rights, art, photography, life journey…

Diary entries – 2015

Diary entries – 2009-14, 2016-19

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Diary entries – 2009

Diary entries – 2010

Diary entries – 2011

Diary entries – 2012

Diary entries – 2013

Diary entries – 2014

Diary entries – 2015-2019

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The inspiration of dreamers

The Tipping Point

We haven’t arrived, there is more to do

Be different, be the one and not the many, and make a difference

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Light and Darkness

MAD, BAD, and SAD

Housed but feeling temporarily not at home

Suicide Safety Net

Not so Superman/girl

Getting through the night

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Lies, Damned Lies & Mental Health Statistics

Theresa May

Jeremy Hunt

Wider Societal Impact

Eighteen Weeks, as if!

Discovery or Recovery

Suicide Risk

Care not Cuts

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What keeps us from giving up?

Caring Talk Saves Lives

Laughter is good medicine

Seek help

MAD, BAD, GAD, and quite possibly SAD

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Being Yourself by Kurt Cobain

Faking it, Being Someone Else

Empathy and Fame

Reading, Writing & Lyrics

Sexuality

Women’s Rights

“He was himself”

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Carrie Fisher, died 27 December 2016

Carrie Fisher Quotes – In Her Own Words

On Writing as Therapy

Her humour

On Life and Being Herself

On Body, Weight and Aging

On Mental Health & Bipolar Mood State

On Surviving and Thriving

Boundaries and Bad Judgements

On acting as if all is well

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International Men’s Day, 19 Nov

World Suicide Prevention Day, 10 Sep

Not a laughing matter

Learn to Talk & Listen

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Writing, speaking, lecturing, talks, humour, comedy, quotes, inspiration, motivation, mental health, disability, LGBTIQA+, equality, human rights, art, photography, life journey…